Hello to All,
Those of us with chronic Lyme Disease don’t want to hear this, but some scientists say that this infection can be transmitted sexually. A new study by an international team of scientists found the bacteria in vaginal secretions and seminal fluids, suggesting that sexual transmission of the disease occurs. Their findings are presented in the January issue of the Journal of Investigative Medicine.
I have been ill for 15 years with this disease, and my spouse and I have been together for longer than that. So far he doesn’t show any symptoms. But I always wonder if it’s there, lying in wait for his immune system to weaken. I fear this greatly. One sick person in the house is bad enough. Two ill people would be devastating. I know of entire families who have Lyme Disease.
Have I killed off enough of this infection so as not to be contagious? Should we actually start using protection during sex NOW after all these years? (No way, we both decided). I think it more reasonable for him to be tested and treated if necessary. There are also immune enhancing substances and herbs that can be used for prevention. (Stephen Buhner suggests astragalus as a good one for prevention and early treatment). But for new sexual partners, using protection sounds like a good idea (for many reasons, of course).
The implications of this study are alarming. The transmission through bodily fluids means a much greater incidence of this disease than most thought possible. It means that sexual partners can get it from one another, and that mothers can pass it to their unborn children. Though the CDC denies it, this disease may truly become an epidemic, if it is not one already.
That’s enough for now. I’m getting rather depressed thinking about it.
I’m very pleased today. I talked with my doctor and he thinks that the discomfort caused by the grapefruit seed extract wasn’t a herxheimer reaction, it was intolerance. I didn’t know that you could tell the difference, but he says there are clues. In general the guidelines are:
- A herx reaction is generally marked by multiple symptoms such as malaise, muscle pain, fatigue, headache, and a flu-like feeling that lasts for weeks.
- Medication intolerance is generally marked by isolated symptoms that resolve quickly upon discontinuing the medication.
I had intense headaches on GSE, even at very small doses. That shouldn’t happen. Also, the HA’s stopped immediately when I stopped the GSE. So I was intolerant! He suggested alternate cyst busting drugs:
- Metronidazole (I used this years ago and it caused awful nausea)
- Tinidazole (extremely expensive: $700/month)
- Rifampin (can cause liver problems. I know someone this happened to)
- Fluconazole, aka Diflucan. (This is my best option. I already take it for yeast problems, and it agrees with me. It isn’t as strong as the others, but I can take it for a prolonged period).
The nice news is that I feel good on my current regimen without the GSE. My headaches and neck pain are pretty much gone. I haven’t noticed bad night sweats. My energy level is improving. So this sounds like my magic combination for a while. I have a few other problems to solve, such as insomnia, chemical sensitivities, allergies, and periodic vulvodynia. But I’m relieved and I feel very hopeful that I’m on the right path.
The plan is to treat the Babesia for a minimum of 4 months, and stay on the ABX for Lyme for a while. Then I’ll switch over to herbals, probably for the long haul. I understand that long term maintenance is probably required for me. I accept the fact that I probably won’t be cured, but can achieve long term remission and live a “normal” life. I will be thrilled if this happens.
Hello to All,
Three weeks ago, I started ABX treatment with Biaxin and Malarone, and I was doing pretty well. My energy is still low and I’m still having wicked bad insomnia (probably related), but my headaches and neck pain subsided! I’ll take any victory that I can get.
Then I added grapefruit seed extract (GSE) into the mix per my doctor’s instructions, 250 mg 2x/day.
Wham! The herx hit me. Daily migraines, lightheadedness, dizziness, worsening fatigue, trouble finding my breath at the slightest exertion. So I did my usual routine of detox and aklalinization:
- Lessen the dose of the offending medicine until tolerable
- Vitamin C
- Alka Seltzer Gold
- Lemon water
- Coffee enemas
- Epsom salt baths
GSE is known to break up biofilms and cysts where the infections hide. I’d say that it’s effective!
So my body has calmed down considerably. I reduced my dose of GSE to ½ of a 125mg pill per day. I will work up slowly as tolerated. My goals now are to:
1) Find the dose of GSE that challenges me without totally disabling me, and,
2) Keep trying sleep medications until I find one that is effective. (Unfortunately, the Trazodone I was using ceased to be effective after a few months).
So I trudge forward…