Category Archives: antibiotic treatment

Progress Report September, 2015

Hello To All,

I haven’t posted to my blog in months. I went through hell on antibiotics in the spring, and I felt like taking a break from it all this summer. On a positive note, I felt quite good from late June through August. Here is an update.

As I mentioned in the spring, I’ve been using a frequency generator (aka a Rife machine) for 12 months now to kill off the borrelia. My doctor is very supportive of this, but says that I need something to kill the dormant or cyst form of the infection. I tried grapefruit seed extract and that gave me horrendous headaches. Ditto for Samento and Banderol. I then tried Tinidazole. I lasted on that for three months and crashed hard with gut and yeast problems. I stopped the ABX, kept rifing and doing some serious detox over the summer and lo and behold, I felt pretty decent! In particular, I went back on three Pekana detox remedies (Apo-hepat, Itires, and Renelix). I’ve come to realize that these remedies are super helpful for me.

I started on the herb Cumanda this past month. I stopped it because it, too gave me horrendous headaches. My naturopath suggested that I try andrographis. According to Stephen Buhner, this herb also kills the cyst form of borrelia.

So, where am I after almost 4 years of treatment? I’m not yet recovered, but I have made progress. I’m just getting frustrated and impatient at how long this is taking. I want to go back to work. I want to have fun. I want my life back!

I was feeling a bit despondent this month. I went to see author Katina Makris talk about her recovery from Lyme. (She is the one who wrote Out of the Woods. She has a new book out and she is touring). I felt a renewed sense of hope after hearing her talk. Her recovery took a long time, too. But she’s doing great now!

I try to remain hopeful. I also try to remember that there are many pathways to healing from Lyme, and many people who do indeed recover. So I keep slogging away at it.

Best,

Laura

#Lyme Disease and Rife Machines Part 2

Hello to All,

I haven’t felt like writing in a while. I’ve been in a holding pattern waiting to see how I felt after several months of killing Borrelia with a Rife machine. This technology is pretty new to me and I’m trying to understand it better. I’m also trying to decide how much faith to put in a treatment that is so alternative.

When I last wrote, my doctor had put me on Teasel root. This herbal antimicrobial made me miserable even though I reduced my dose to 1/10 of a drop once per week. I had profound fatigue, headaches, muscle weakness, shakiness, and light-headedness even at this low dose. My doctor agreed with me that these were side effects and not worth it for me. We discussed alternate medications, especially ones that would be compatible with rifing. He suggested tinidazole.

According to people knowledgeable about Rife machines, using antibiotics is counterproductive to rifing. Antibiotics can cause resistance and drive the pathogens deeper into the tissues as they avoid exposure to the drugs. Certain ABX can be used intermittently while rifing, such as cyst busters like metronidazole or tinidazole. I just read Bryan Rosner’s book Lyme Disease and Rife Machines and he says this as well.

I’m doing a treatment protocol that increases the time and number of frequencies as you can tolerate it.  I’m following auto channels recommended to me. Auto channels cycle through groups of frequencies. I started with channel 466, then I added 467. I just added channel 468 on top of those two. That will cover about 100 frequencies against Lyme spirochetes, hatchlings, eggs, and Babesia. The nice thing about the GB-4000 is that it can run 8 frequencies at once, so you can cover a lot of ground.

As for my response, I had 30-hour flu-like herx responses to the treatments for a number of sessions. The herxes decreased so I added time and more frequencies until I herxed again. I just started the tinidazole, so we’ll see what that does to me…

Best,

Laura

#Lyme Disease/Babesia Treatment: Antibiotics and GSE

Hello to All,

Three weeks ago, I started ABX treatment with Biaxin and Malarone, and I was doing pretty well. My energy is still low and I’m still having wicked bad insomnia (probably related), but my headaches and neck pain subsided! I’ll take any victory that I can get.

Then I added grapefruit seed extract (GSE) into the mix per my doctor’s instructions, 250 mg 2x/day.

Wham! The herx hit me. Daily migraines, lightheadedness, dizziness, worsening fatigue, trouble finding my breath at the slightest exertion. So I did my usual routine of detox and aklalinization:

  1. Lessen the dose of the offending medicine until tolerable
  2. Vitamin C
  3. Alka Seltzer Gold
  4. Lemon water
  5. Coffee enemas
  6. Epsom salt baths

GSE is known to break up biofilms and cysts where the infections hide. I’d say that it’s effective!

So my body has calmed down considerably. I reduced my dose of GSE to ½ of a 125mg pill per day. I will work up slowly as tolerated. My goals now are to:

1) Find the dose of GSE that challenges me without totally disabling me, and,

2) Keep trying sleep medications until I find one that is effective. (Unfortunately, the Trazodone I was using ceased to be effective after a few months).

So I trudge forward…

Best,

Laura

#Lyme Disease Treatment Update

Hello to All,

I saw my LLMD this week and I’m starting treatment with pharmaceutical antibiotics. I’m apprehensive but also hopeful that this regimen could turn things around for me. He had me start cholestyramine and liposomal glutathione for detox, and pharmaceutical yeast meds. He also had me start Fibroboost and Meriva for inflammation control, and NT Factor Energy for mitochondrial support. The first antibiotic I start is Biaxin, then I’ll add in Malarone for the Babesia. If tolerated, I add in grapefruit seed extract to break up cysts. I’m on day 2 of the Biaxin and I’m waiting for the storm to begin. I hope that the detox and inflammation supplements will minimize any herxes, but we’ll see.

I wasn’t prepared for the cost of treatment. My ABX cost $300, and the antifungals cost another $50 (out of pocket). The detox supplements will run me another $150 per month. This is on top of the cost of office visits and my other supplements. Yikes. It’s a good thing my husband loves me. I’ve become one expensive gal.

I started reading Dr. Richard Horowitz’ book, Why Can’t I Get Better? Solving the Mystery of Lyme and Chronic Disease, which is #10 on the New York Times list of top-selling science books. His approach is comprehensive, with a 16 point diagnosis map to determine the whole picture of what ails chronically ill patients. The book is quite dense, as it is meant for both patients and practitioners. But it is written clearly and in a friendly tone, so I find it easy to read, albeit in small chunks. I find the case studies very helpful. I can relate to his patients very well.

So that’s all for now. I’ll write an update when all the meds kick in. I hope for the best, but am preparing for the worst.

Best,

Laura

Renewed Hope for Lyme Disease and Biotoxin Illness

Hello to All,

I met with my third doctor in three years on my ongoing quest for health. I was impressed by his comprehensive approach to my illness. Here is the gist of it:

  • I have Lyme Disease (he is my third doc to confirm this*) AND
  • I also have Babesia (diagnosed by symptoms. Testing is $$$ and not always helpful) AND
  • Poor phase 1 and 2 detoxification ability resulting in inadequate glutathione production
  • Inability to detox mold resulting in biotoxin illness (revealed by genetic testing)
  • Methylation defects – MTFHR and others
  • Ongoing yeast problems
  • Increased intestinal permeability (aka Leaky Gut syndrome)
  • High levels of lead and mercury (though they came down significantly with IV chelation)
  • Reduced liver function
  • Reduced thyroid and adrenal function

Now, I already knew most of this, but it’s refreshing to have someone put it all together at one time. Now we’ll see if he has solutions for my problems. I can only hope that this is the complete picture of my health problems and there are no others in hiding. I’m testing my metal levels and spending the next 5 weeks detoxing before proceeding with Babesia treatment. Here are a few meds and supplements that I’ll be adding to my regimen:

  • Apex Methyl-SP formula, containing high doses of B vitamins, TMG and choline (given by my current naturopath)
  • Researched Nutritionals Liposomal Glutathione
  • Cholestyramine
  • Diflucan every other day
  • Nystatin twice per day

I’m also experimenting with my diet. I mostly avoid gluten, dairy, and sugar, and now I’m cutting down on the meat and omitting beef and pork entirely. I must admit, I feel a little starved.

I feel a renewed sense of hope after meeting with him. But as they say, the proof of the pudding is in the eating. I’ll track my symptoms and report back.

Best,

Laura

* Note: I have a Lyme Disease diagnosis by two naturopaths and an MD whose specialty is treating Lyme, ME/CFS and similar conditions. I’ve thought about seeing an infectious disease doc, but I doubt I’ll get any assistance from one. My diagnosis does not meet CDC criteria.