Category Archives: babesia

#Lyme Disease/Babesia Treatment: Antibiotics and GSE

Hello to All,

Three weeks ago, I started ABX treatment with Biaxin and Malarone, and I was doing pretty well. My energy is still low and I’m still having wicked bad insomnia (probably related), but my headaches and neck pain subsided! I’ll take any victory that I can get.

Then I added grapefruit seed extract (GSE) into the mix per my doctor’s instructions, 250 mg 2x/day.

Wham! The herx hit me. Daily migraines, lightheadedness, dizziness, worsening fatigue, trouble finding my breath at the slightest exertion. So I did my usual routine of detox and aklalinization:

  1. Lessen the dose of the offending medicine until tolerable
  2. Vitamin C
  3. Alka Seltzer Gold
  4. Lemon water
  5. Coffee enemas
  6. Epsom salt baths

GSE is known to break up biofilms and cysts where the infections hide. I’d say that it’s effective!

So my body has calmed down considerably. I reduced my dose of GSE to ½ of a 125mg pill per day. I will work up slowly as tolerated. My goals now are to:

1) Find the dose of GSE that challenges me without totally disabling me, and,

2) Keep trying sleep medications until I find one that is effective. (Unfortunately, the Trazodone I was using ceased to be effective after a few months).

So I trudge forward…

Best,

Laura

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#Lyme Disease Treatment Update

Hello to All,

I saw my LLMD this week and I’m starting treatment with pharmaceutical antibiotics. I’m apprehensive but also hopeful that this regimen could turn things around for me. He had me start cholestyramine and liposomal glutathione for detox, and pharmaceutical yeast meds. He also had me start Fibroboost and Meriva for inflammation control, and NT Factor Energy for mitochondrial support. The first antibiotic I start is Biaxin, then I’ll add in Malarone for the Babesia. If tolerated, I add in grapefruit seed extract to break up cysts. I’m on day 2 of the Biaxin and I’m waiting for the storm to begin. I hope that the detox and inflammation supplements will minimize any herxes, but we’ll see.

I wasn’t prepared for the cost of treatment. My ABX cost $300, and the antifungals cost another $50 (out of pocket). The detox supplements will run me another $150 per month. This is on top of the cost of office visits and my other supplements. Yikes. It’s a good thing my husband loves me. I’ve become one expensive gal.

I started reading Dr. Richard Horowitz’ book, Why Can’t I Get Better? Solving the Mystery of Lyme and Chronic Disease, which is #10 on the New York Times list of top-selling science books. His approach is comprehensive, with a 16 point diagnosis map to determine the whole picture of what ails chronically ill patients. The book is quite dense, as it is meant for both patients and practitioners. But it is written clearly and in a friendly tone, so I find it easy to read, albeit in small chunks. I find the case studies very helpful. I can relate to his patients very well.

So that’s all for now. I’ll write an update when all the meds kick in. I hope for the best, but am preparing for the worst.

Best,

Laura

Renewed Hope for Lyme Disease and Biotoxin Illness

Hello to All,

I met with my third doctor in three years on my ongoing quest for health. I was impressed by his comprehensive approach to my illness. Here is the gist of it:

  • I have Lyme Disease (he is my third doc to confirm this*) AND
  • I also have Babesia (diagnosed by symptoms. Testing is $$$ and not always helpful) AND
  • Poor phase 1 and 2 detoxification ability resulting in inadequate glutathione production
  • Inability to detox mold resulting in biotoxin illness (revealed by genetic testing)
  • Methylation defects – MTFHR and others
  • Ongoing yeast problems
  • Increased intestinal permeability (aka Leaky Gut syndrome)
  • High levels of lead and mercury (though they came down significantly with IV chelation)
  • Reduced liver function
  • Reduced thyroid and adrenal function

Now, I already knew most of this, but it’s refreshing to have someone put it all together at one time. Now we’ll see if he has solutions for my problems. I can only hope that this is the complete picture of my health problems and there are no others in hiding. I’m testing my metal levels and spending the next 5 weeks detoxing before proceeding with Babesia treatment. Here are a few meds and supplements that I’ll be adding to my regimen:

  • Apex Methyl-SP formula, containing high doses of B vitamins, TMG and choline (given by my current naturopath)
  • Researched Nutritionals Liposomal Glutathione
  • Cholestyramine
  • Diflucan every other day
  • Nystatin twice per day

I’m also experimenting with my diet. I mostly avoid gluten, dairy, and sugar, and now I’m cutting down on the meat and omitting beef and pork entirely. I must admit, I feel a little starved.

I feel a renewed sense of hope after meeting with him. But as they say, the proof of the pudding is in the eating. I’ll track my symptoms and report back.

Best,

Laura

* Note: I have a Lyme Disease diagnosis by two naturopaths and an MD whose specialty is treating Lyme, ME/CFS and similar conditions. I’ve thought about seeing an infectious disease doc, but I doubt I’ll get any assistance from one. My diagnosis does not meet CDC criteria.