Category Archives: bartonella

Bartonella as a Possible Cause for Rheumatic Disease

Hello to All,

Following is a link to an excellent audio interview with Dr. Robert Mozayeni, a rheumatologist in Bethesda, MD who has conducted research with patients with chronic inflammatory diseases and found a link to Bartonella infection. I highly recommend listening to it. This could be a real breakthrough, especially since it comes from a conventionally trained MD.

http://www.peoplespharmacy.com/MozayeniXtended.mp3

Here are some important points from the interview:

  • Chronic  rheumatological diseases often have an infection as a root cause
  • Lyme Disease is often a blanket diagnosis when in fact organisms other than borrelia are the problem. Those with Bartonella can often be misdiagnosed as having chronic borreliosis, which similarly manifests, though the two are distinct.
  • Treating a patient for Borrelia when they actually have Bartonella can have detrimental effects
  • Bartonella is hard to detect and difficult to treat
  • Typical testing for Bartonella is often faulty and results in under diagnosis
  • Treating Bartonella involves a long course of antibiotics, at least 6 months
  • Neurological symptoms are common with bartonella infection
  • Patients are often stigmatized and traumatized after repeated treatment failures in the medical system

Background

In collaboration with Dr. Robert Mozayeni, a rheumatologist based in Maryland, and Dr. Ricardo Maggi, a research assistant professor at NC State, Dr. Ed Breitschwerdt, professor of internal medicine at NC State’s College of Veterinary Medicine and adjunct professor of medicine at Duke University, tested blood samples from 296 patients for evidence of Bartonella infection. The patients had previously been diagnosed with conditions ranging from Lyme disease to arthritis to chronic fatigue. Since rheumatic symptoms have sometimes been reported following cat scratch disease, the researchers wanted to see if these patients tested positive for B. henselae.

Of the 296 patients, 62 percent had Bartonella antibodies, which supported prior exposure to these bacteria.

Breitschwerdt and Maggi figured out how to cultivate the bacteria in the laboratory from blood samples of infected people. They founded a company called Galaxy Diagnostics to handle the laboratory volume. For information on Bartonella testing used by Dr. Mozayeni’s Clinic, please visit http://www.galaxydx.com/web/human-health/test-descriptions/

I dislike the narrow definition of Lyme Disease as an infection of only Borrelia, because so often these infections go together. However, I think that this research is a big step. Hurray for Drs. Mozayeni, Breitschwerdt, and Maggi!

Best,

Laura

#Lyme Disease, Pain, and Despair

Hello Again to All,

I am in pain. Burning, unrelenting pain that extends from my middle back, into my shoulders, across my chest, up to the trapezoid muscles, up my neck, and surrounds my head. The headache is non-stop, despite prescription pain meds. I’m nauseated and fatigued. What is happening to me? I’m once again treating bartonella, that’s what.

I went through an unexpected and intense detox reaction in August and September after taking TWO drops of Byron White A-BART. I sailed though previous treatments with BW A-L Formula and A-BAB Formula. I felt great for several months in the spring and summer. And then I hit the proverbial wall. So I guess we have found my dominant infection. Which is a good thing, right? But how do I get through this? I can’t go around it. I must go through it. But how? For starters, I’m in full detox mode. For me this means omitting anything challenging to my body.

  • Stop/reduce intense detox and anti-microbial meds and supplements.
  • Use anti-inflammatories and supportive treatments, such as Quercetin, Meriva, Vitamin C.
  • Follow a liquid diet with vegan protein/fruit shakes and broths with well-cooked veggies if I tolerate them.
  • Do gentle detox, like extra coffee enemas, as needed.
  • Get a BioSET treatment to help my body cope.

These all help bring down the inflammation for me.

I have prescription pain meds to help take the edge off, but they leave me dopey and sleepy. I wind up padding aimlessly around the house, lying on the couch, being generally unproductive and feeling worthless. Then the fear sets in and I become a ball of insecurity. How am I supposed to go to work like this? How can I take care of the house? We’re going to run out of money if I can’t work. I can’t afford my medical bills, let alone all the other life expenses. Who would want to be around me? Who could love me like this? Ugh.

I rarely write about the emotional side of this illness. That’s because I rarely deal with it. I don’t deal well with anger, suffering, and pain. I don’t cry much. I bury my emotions and wear my repression like a badge of honor. I don’t complain. I’m in control, which means I must be strong, right?

I’ve done my share of therapy, and I still have a hard time releasing. I can squeeze out a couple of tears now and then, but a full-on good cry is rare. I just walk around in a state of semi-depression without the ability to engage the emotions on the far ends.

Is there a relationship between the emotional and physical inability to detox? Can you teach your body to detox better, or is it a genetic determination? How does one learn how to cry? By watching sad movies and bringing it on by catharsis? Any suggestions are appreciated. For now, I’m just trying to hang in there.

Laura

Lyme Flares and Detox

Lyme Flares and Detoxing

Hello again dear readers. It’s been a while since my last post. Luckily, this is because I’ve been enjoying summer. I visited family in the Midwest, went up to gorgeous Lake Pend d’Oreilles, and started working again! I’ve been doing part-time freelance technical editing from home – a perfect job for me right now.

So I was going along just fine, and then starting on July 31, the misery returned. Chronic daily headaches, fatigue, heat sensitivity, dizziness, insomnia, some nausea, and general malaise. I have learned enough about my body in the last year to understand that this is a toxicity reaction. So now I’m left wondering what happened?

My doctor started me on the Byron White anti-microbial formula, A-BART, for bartonella. I took one drop in water. Then two days later I took a second drop. And I haven’t felt right since. This, coupled with the hot weather, could be the culprit. Luckily, the work I’m doing is not stressful, but perhaps the EMF output from my laptop is also irritating.

I have known for several years now that I react poorly to heat and direct sunlight. From what I’ve read, Lyme pathogens and their ilk don’t like heat. Intense heat causes die-off, and then you’re supposed to sweat out the toxins. Except that I hardly sweat. Even in a sauna, it takes 20+ minutes for me to start a good sweat. I don’t excrete well in general, either emotionally or physically. Knowing this, I need to help my body as much as I can to expel toxins. Especially now that I know I have a chronic infection.

After doing much research, I’ve devised the following detox plan:

  • 500 mg quercetin, 3x per day (antihistamine)
  • 100 mg milk thistle 1 – 3x per day (aids the liver)
  • Easy to digest foods and daily green smoothies

Daily intense treatment as needed:

  • 5 – 10 g buffered vitamin C
  • Coffee enema shortly after
  • Warm/hot epsom salt bath immediately after

This, coupled with 1 – 2 g of acetaminophen, made me feel much better today. The headache is gone for now, and I feel clear headed and focused. I will also start more frequent sauna sessions to see if this helps. I’ve also read about people drinking bentonite clay to pull toxins out of the digestive tract. Sounds like it’s worth a try.

I’m also trying to remain positive and fight the depression that settled over me. I was feeling so good in the spring that I thought, “I’m on the mend! Things will only improve from here!” But from everything I’ve read, this is a long journey that will require constant vigilance over my health for years to come. That, in and of itself, is a bit depressing. If you read a lot of Lyme blogs, you know that people takes years to recover, and continue to relapse. I keep hoping that if I give my body what it needs, that I will make a full recovery. As a matter of fact, I insist on it being that way and will accept nothing less. So the fight continues.

–        Laura