Category Archives: detoxification

Lyme Disease, Yeast, and Heavy Metals

Hello Again,

The yeast has returned… Just when I think I have it licked, it comes back. I’ve been through numerous courses of natural and pharmaceutical antifungal treatment and I maintain a good diet, but it always comes back after a couple of months. My doc figures that it’s a biofilm problem, so I’m back on enzymes.

Over the years I’ve experimented with many systemic enzymes for biofilm and yeast. By far the most difficult one is Interfase Plus with EDTA. Which got me thinking… State of the art biofilm treatment involves a chelating agent, like EDTA or lactoferrin, to pull the metals from the biofilm to help degrade it. Yeast and mercury, in particular, have an affinity for one another.

I did 11 months of intravenous chelation with EDTA and DMPS in 2010/2011. It reduced my lead and mercury levels substantially (and my bank account, too). However, my last test revealed that I still have some lead and mercury in me. My doctor says that amount shouldn’t be a problem, but others say any mercury in the body is a problem. I’ve heard people with chronic yeast say that it didn’t go away until they removed the ALL of the dangerous metals. So I’m going forth with more chelation.

In my research, I came across people online and in my Lyme community who use the low and frequent dose protocol developed by Andrew Cutler, PhD, a chemist. See http://www.noamalgam.com/ or www.livingnetwork.co.za. His protocol involves taking low doses of either DMPS or DMSA and later adding alpha lipoic acid (ALA) to clear mercury from the brain. His protocol has several important differences from the others.

  • Instead of taking high dose chelating agents once or twice per month, you take a low dose around the clock for several days in a row. This minimizes redistribution of the metals after the drugs wear off.
  • You must also take ALA which crosses the blood brain barrier.
  • You can do this protocol on your own at home.
  • The protocol is inexpensive.

Any chelation therapy has its risks, but his approach seems safe and logical to me. Also, this protocol is often done with young children who have autism. I’m reading as much as I can about the protocol and deciding if I want to do it. I’ll keep you all posted if and when I start.

Best,

Laura

Advertisements

Progress Report September, 2015

Hello To All,

I haven’t posted to my blog in months. I went through hell on antibiotics in the spring, and I felt like taking a break from it all this summer. On a positive note, I felt quite good from late June through August. Here is an update.

As I mentioned in the spring, I’ve been using a frequency generator (aka a Rife machine) for 12 months now to kill off the borrelia. My doctor is very supportive of this, but says that I need something to kill the dormant or cyst form of the infection. I tried grapefruit seed extract and that gave me horrendous headaches. Ditto for Samento and Banderol. I then tried Tinidazole. I lasted on that for three months and crashed hard with gut and yeast problems. I stopped the ABX, kept rifing and doing some serious detox over the summer and lo and behold, I felt pretty decent! In particular, I went back on three Pekana detox remedies (Apo-hepat, Itires, and Renelix). I’ve come to realize that these remedies are super helpful for me.

I started on the herb Cumanda this past month. I stopped it because it, too gave me horrendous headaches. My naturopath suggested that I try andrographis. According to Stephen Buhner, this herb also kills the cyst form of borrelia.

So, where am I after almost 4 years of treatment? I’m not yet recovered, but I have made progress. I’m just getting frustrated and impatient at how long this is taking. I want to go back to work. I want to have fun. I want my life back!

I was feeling a bit despondent this month. I went to see author Katina Makris talk about her recovery from Lyme. (She is the one who wrote Out of the Woods. She has a new book out and she is touring). I felt a renewed sense of hope after hearing her talk. Her recovery took a long time, too. But she’s doing great now!

I try to remain hopeful. I also try to remember that there are many pathways to healing from Lyme, and many people who do indeed recover. So I keep slogging away at it.

Best,

Laura

#Lyme Disease Treatment Update

Hello to All,

I saw my LLMD this week and I’m starting treatment with pharmaceutical antibiotics. I’m apprehensive but also hopeful that this regimen could turn things around for me. He had me start cholestyramine and liposomal glutathione for detox, and pharmaceutical yeast meds. He also had me start Fibroboost and Meriva for inflammation control, and NT Factor Energy for mitochondrial support. The first antibiotic I start is Biaxin, then I’ll add in Malarone for the Babesia. If tolerated, I add in grapefruit seed extract to break up cysts. I’m on day 2 of the Biaxin and I’m waiting for the storm to begin. I hope that the detox and inflammation supplements will minimize any herxes, but we’ll see.

I wasn’t prepared for the cost of treatment. My ABX cost $300, and the antifungals cost another $50 (out of pocket). The detox supplements will run me another $150 per month. This is on top of the cost of office visits and my other supplements. Yikes. It’s a good thing my husband loves me. I’ve become one expensive gal.

I started reading Dr. Richard Horowitz’ book, Why Can’t I Get Better? Solving the Mystery of Lyme and Chronic Disease, which is #10 on the New York Times list of top-selling science books. His approach is comprehensive, with a 16 point diagnosis map to determine the whole picture of what ails chronically ill patients. The book is quite dense, as it is meant for both patients and practitioners. But it is written clearly and in a friendly tone, so I find it easy to read, albeit in small chunks. I find the case studies very helpful. I can relate to his patients very well.

So that’s all for now. I’ll write an update when all the meds kick in. I hope for the best, but am preparing for the worst.

Best,

Laura

Renewed Hope for Lyme Disease and Biotoxin Illness

Hello to All,

I met with my third doctor in three years on my ongoing quest for health. I was impressed by his comprehensive approach to my illness. Here is the gist of it:

  • I have Lyme Disease (he is my third doc to confirm this*) AND
  • I also have Babesia (diagnosed by symptoms. Testing is $$$ and not always helpful) AND
  • Poor phase 1 and 2 detoxification ability resulting in inadequate glutathione production
  • Inability to detox mold resulting in biotoxin illness (revealed by genetic testing)
  • Methylation defects – MTFHR and others
  • Ongoing yeast problems
  • Increased intestinal permeability (aka Leaky Gut syndrome)
  • High levels of lead and mercury (though they came down significantly with IV chelation)
  • Reduced liver function
  • Reduced thyroid and adrenal function

Now, I already knew most of this, but it’s refreshing to have someone put it all together at one time. Now we’ll see if he has solutions for my problems. I can only hope that this is the complete picture of my health problems and there are no others in hiding. I’m testing my metal levels and spending the next 5 weeks detoxing before proceeding with Babesia treatment. Here are a few meds and supplements that I’ll be adding to my regimen:

  • Apex Methyl-SP formula, containing high doses of B vitamins, TMG and choline (given by my current naturopath)
  • Researched Nutritionals Liposomal Glutathione
  • Cholestyramine
  • Diflucan every other day
  • Nystatin twice per day

I’m also experimenting with my diet. I mostly avoid gluten, dairy, and sugar, and now I’m cutting down on the meat and omitting beef and pork entirely. I must admit, I feel a little starved.

I feel a renewed sense of hope after meeting with him. But as they say, the proof of the pudding is in the eating. I’ll track my symptoms and report back.

Best,

Laura

* Note: I have a Lyme Disease diagnosis by two naturopaths and an MD whose specialty is treating Lyme, ME/CFS and similar conditions. I’ve thought about seeing an infectious disease doc, but I doubt I’ll get any assistance from one. My diagnosis does not meet CDC criteria.

#Lyme Disease, Toxins, Activated Charcoal, and Food Intolerance

Hello Again To All,

I’m back after a long absence due to an intense detox or possibly an adverse reaction to medication. I believe ketoconazole was the culprit, but I may never know. So I apologize if it takes me a while to post comments or return emails.

During the crisis, my doctor recommended stopping all meds and taking the usual detox remedies of Pekanas, coffee enemas, saunas, vitamin C, Meriva turmeric, and something new for me: activated charcoal. She says one has to be careful using charcoal on a regular basis because it not only adsorbs (attracts particles to itself) toxins, but also adsorbs beneficial vitamins and minerals.

I tried 2 caps of charcoal in the evening and didn’t notice any benefit. Then I increased to 2 caps twice per day. Still no obvious relief. Then I started taking it 30 minutes before eating lunch and dinner and discovered something wonderful: it prevents me from getting food related headaches!

Two prominent mold researchers/physicians, James Schaller, MD and Ritchie Shoemaker, MD recommend a resin binder (cholestyramine or Welchol) 30 minutes before meals to bind up toxins in the bile. So I decided to follow this protocol with the charcoal. Voila! It may not be a long term solution, but it has reduced my headaches greatly. My Candida and food intolerances have obviously returned, so I need to deal with them. But the charcoal is saving me a lot of pain and allowing me to eat solid, nutritious food for the time being.

Dr. Schaller has a comparison of the effectiveness of common toxin binders on mold toxins on his website: http://www.usmoldphysician.com/articles/comparingmoldtoxinbinders.html

Comparing the Mold Toxin Binders

  • Cholestyramine showed the best adsorption capacity. It was quite effective at 85% absorption.
  • Activated Carbon had the second best mold toxin absorption at 62%.
  • Bentonite clay adsorbed minimally. Even when the amount of toxin load in the water was reduced to a low load of only 13 microg/ml, the Bentonite clay still only bound 12% of the toxin.
  • Celite was not effective even at the lowest tested FB1 concentration of 3.2 microg/ml.

So for those of us who require slower detox, charcoal is a good option. And it’s cheap, too! I was advised to take extra water and fiber to avoid constipation. I also need to take extra minerals, zinc, magnesium, potassium, and trace minerals to avoid depletion.

My next steps are to:
1) Have a few NAET/BioSET treatments to calm the food sensitivities,
2) Improve gut health and CAREFULLY kill off more fungus and bacteria,
3) Do genetic testing to determine SNP’s and methylation defects so I can detox and metabolize better,
4) Correct probable hormonal imbalances related to my age: the dreaded 45 and onset of what is most likely peri-menopause. (I’ve been having heart palpitations, nighttime sweats, and wicked insomnia. Yup, I think it has begun).
5) Support adrenals. I’m trying cordyceps, a Chinese mushroom herbal remedy.

More to come soon.

– Laura

#Lyme Disease Infections and Intense Die-Off

Hello to All,

I’m sorry for the long absence. I’m at the tail end of the worst die-off/detox reaction I’ve ever had. I was struggling so much that I decided to try a new doctor in January. He put me on an anti-fungal, a biofilm dissolving enzyme, and did neural therapy (injections) into my abdomen, neck, and swollen lymph nodes.

Since that time, I’ve suffered from daily migraines, pronounced dizziness, increased insomnia, and eye pain. I’ve been unable to walk, drive, or even take a bus. I can’t view a computer screen for more than a minute without getting eye pain and a migraine. Every time I ingest solid food I get a headache.

I feel cut off from the world around me. All I can do is to sit or lie in a darkened room and maybe read an easy book or magazine. The vulvodynia pain also returned, so I can’t even have sex without pain. Almost everything right now causes me pain.

Pain.
Pain.
Pain.

This is the most disabled I’ve ever been. I’ve been unable to moderate comments or read or return emails during this time. I will return to these as soon as I can.

On a positive note, I’m so thankful for my parents, my friends, and my spouse who spent time with me, talked with me on the phone, drove me to appointments, and kept me from falling into total despair. Knowing that I’m loved makes it possible to endure this miserable disease.

-Laura

#Lyme Disease, Pain, and Despair

Hello Again to All,

I am in pain. Burning, unrelenting pain that extends from my middle back, into my shoulders, across my chest, up to the trapezoid muscles, up my neck, and surrounds my head. The headache is non-stop, despite prescription pain meds. I’m nauseated and fatigued. What is happening to me? I’m once again treating bartonella, that’s what.

I went through an unexpected and intense detox reaction in August and September after taking TWO drops of Byron White A-BART. I sailed though previous treatments with BW A-L Formula and A-BAB Formula. I felt great for several months in the spring and summer. And then I hit the proverbial wall. So I guess we have found my dominant infection. Which is a good thing, right? But how do I get through this? I can’t go around it. I must go through it. But how? For starters, I’m in full detox mode. For me this means omitting anything challenging to my body.

  • Stop/reduce intense detox and anti-microbial meds and supplements.
  • Use anti-inflammatories and supportive treatments, such as Quercetin, Meriva, Vitamin C.
  • Follow a liquid diet with vegan protein/fruit shakes and broths with well-cooked veggies if I tolerate them.
  • Do gentle detox, like extra coffee enemas, as needed.
  • Get a BioSET treatment to help my body cope.

These all help bring down the inflammation for me.

I have prescription pain meds to help take the edge off, but they leave me dopey and sleepy. I wind up padding aimlessly around the house, lying on the couch, being generally unproductive and feeling worthless. Then the fear sets in and I become a ball of insecurity. How am I supposed to go to work like this? How can I take care of the house? We’re going to run out of money if I can’t work. I can’t afford my medical bills, let alone all the other life expenses. Who would want to be around me? Who could love me like this? Ugh.

I rarely write about the emotional side of this illness. That’s because I rarely deal with it. I don’t deal well with anger, suffering, and pain. I don’t cry much. I bury my emotions and wear my repression like a badge of honor. I don’t complain. I’m in control, which means I must be strong, right?

I’ve done my share of therapy, and I still have a hard time releasing. I can squeeze out a couple of tears now and then, but a full-on good cry is rare. I just walk around in a state of semi-depression without the ability to engage the emotions on the far ends.

Is there a relationship between the emotional and physical inability to detox? Can you teach your body to detox better, or is it a genetic determination? How does one learn how to cry? By watching sad movies and bringing it on by catharsis? Any suggestions are appreciated. For now, I’m just trying to hang in there.

Laura