Category Archives: progress and updates

Lyme Disease and Yeast: A Positive Update

Hello To All,

I know that I have a tendency to post when I feel poorly, so I think it’s high time for a positive update. Here it is: I feel pretty darn good! There are three things to which I can attribute this change:

1. My doc put me back on pharmaceuticals for yeast – indefinitely:

  • Diflucan, 200mg 1x per week
  • Nystatin, 1,000,000 IU 2x per day
  • Amphotericin B, 3X per day.

I started feeling better after a couple of weeks on this protocol. No more burning vulvodynia, fewer digestive problems, fewer headaches, less chemical sensitivity.

2. I started taking a low dose of Maca for the adrenals. Maca has turned out to be a wonder herb for me. My energy is much better and I feel more vigorous than I have in years. It is also beneficial for the libido, as people say it is.

3. I changed my diet (yet again). After years of being quite thin, I started gaining weight in my midsection after prolonged courses of ABX. That in combination with an obvious yeast problem made me seek out another low-carb diet. I started the Dukan Diet which is high protein, low fat, and low carb. Not only have I lost about seven pounds, but I feel much better on this diet. If I adhere to the diet, I have NO headaches and NO digestive problems, and NO bloating. I’m also in a better mood. Supposedly protein is beneficial for mood, and I think that’s true.

I have NO dizziness, vertigo, or lightheadedness. I have NO joint or muscle pain. I can drive for hours without problems, even on the highway. My mood has really improved, despite recent difficulties in the lives of my loved ones. I also feel mentally sharper. I recently made some art. I am even looking for a permanent job instead of little temporary ones. That’s a lot of improvement since the summer.

To follow up on my last post, I decided to try the Cutler heavy metals protocol. I tried low-dose DMSA but it flared the yeast. I’m switching to low-dose DMPS (which I’ve had before via I.V. Tx) I’ll let you know how that goes.

I continue to use a GB-4000 frequency generator for Borrelia and co-infections. I also started using it for fungus. I’ll see how that goes.

As I’ve said before, I believe that yeast/fungus is the big problem for me at this point. I think that diet, a long term killing protocol, chelation, and biofilm treatment are the keys to returning to health for me. Wish me luck!

Best,

Laura

 

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Progress Report July, 2016

Hello To All,

I find that my recent posts all begin with the phrase, “I haven’t written in a while…” When I started this blog I was newly diagnosed with Lyme Disease and I felt hopeful and confident that I would make a full recovery. Four and a half years later I’m still struggling, although a number of debilitating symptoms have improved. I ask myself, why do I still blog? What do I have to offer people except an ongoing experiment that may or may not fully work? I guess that I write for myself to chronicle the process, to help process my feelings, and clarify my thoughts on how to move forward. Mostly, I hope others can learn from all this and recover.

So, where am I in the process?

Symptoms that have improved since 2010:

  • Vertigo (started in 2011 and improved in 2014)
  • Joint pain
  • Muscle pain
  • Headache frequency and severity
  • Food intolerance (major victory!)

What still plagues me:

  • Brain fog
  • Fatigue (worse)
  • Anxiety (worse)
  • Weakness
  • Depression
  • Insomnia (worsened in 2012)
  • Adrenal and thyroid problems
  • Chronic yeast (worse since ABX)
  • Headaches
  • Mild dizziness/lightheadedness (worse in recent weeks)
  • Tinnitus (worse)
  • Chemical sensitivities
  • General fragility

As far as I know I have four underlying problems that are interrelated:

  1. Tick-borne infections
  2. Mercury and lead poisoning
  3. Chronic yeast
  4. Mold intolerance

My doctor thinks that I got on top of the Borrelia and Babesia. (Hurray!) I will continue to use natural antimicrobials and a Rife machine for these bugs. Unfortunately, my doctors can only guess what’s driving the rest of my symptoms.

I’ve been using a high fat diet to improve mitochondrial function, known as the Mito Food Plan. I haven’t noticed any positive effects. Yeast treatment and detox continue to be my most important treatments. However, when I stop the prescription antifungals I relapse, despite a moderate carb, low sugar diet. I’m still trying natural antifungals to see if I tolerate them and if they are effective.

The frustrating thing is the variability of my symptoms. I felt so well last summer and fall, then relapsed during the winter/spring. Despite the frustration, I still believe that my body can heal if given the right tools. So in the coming weeks I plan to research treatments for my remaining problems, talk to my doctor, and create a plan. I suspect that I need more work on the mold and metals part of the problem. This will be the focus of my upcoming posts.

Best,

Laura

Progress Report September, 2015

Hello To All,

I haven’t posted to my blog in months. I went through hell on antibiotics in the spring, and I felt like taking a break from it all this summer. On a positive note, I felt quite good from late June through August. Here is an update.

As I mentioned in the spring, I’ve been using a frequency generator (aka a Rife machine) for 12 months now to kill off the borrelia. My doctor is very supportive of this, but says that I need something to kill the dormant or cyst form of the infection. I tried grapefruit seed extract and that gave me horrendous headaches. Ditto for Samento and Banderol. I then tried Tinidazole. I lasted on that for three months and crashed hard with gut and yeast problems. I stopped the ABX, kept rifing and doing some serious detox over the summer and lo and behold, I felt pretty decent! In particular, I went back on three Pekana detox remedies (Apo-hepat, Itires, and Renelix). I’ve come to realize that these remedies are super helpful for me.

I started on the herb Cumanda this past month. I stopped it because it, too gave me horrendous headaches. My naturopath suggested that I try andrographis. According to Stephen Buhner, this herb also kills the cyst form of borrelia.

So, where am I after almost 4 years of treatment? I’m not yet recovered, but I have made progress. I’m just getting frustrated and impatient at how long this is taking. I want to go back to work. I want to have fun. I want my life back!

I was feeling a bit despondent this month. I went to see author Katina Makris talk about her recovery from Lyme. (She is the one who wrote Out of the Woods. She has a new book out and she is touring). I felt a renewed sense of hope after hearing her talk. Her recovery took a long time, too. But she’s doing great now!

I try to remain hopeful. I also try to remember that there are many pathways to healing from Lyme, and many people who do indeed recover. So I keep slogging away at it.

Best,

Laura

#Lyme Disease and Rife Machines Part 2

Hello to All,

I haven’t felt like writing in a while. I’ve been in a holding pattern waiting to see how I felt after several months of killing Borrelia with a Rife machine. This technology is pretty new to me and I’m trying to understand it better. I’m also trying to decide how much faith to put in a treatment that is so alternative.

When I last wrote, my doctor had put me on Teasel root. This herbal antimicrobial made me miserable even though I reduced my dose to 1/10 of a drop once per week. I had profound fatigue, headaches, muscle weakness, shakiness, and light-headedness even at this low dose. My doctor agreed with me that these were side effects and not worth it for me. We discussed alternate medications, especially ones that would be compatible with rifing. He suggested tinidazole.

According to people knowledgeable about Rife machines, using antibiotics is counterproductive to rifing. Antibiotics can cause resistance and drive the pathogens deeper into the tissues as they avoid exposure to the drugs. Certain ABX can be used intermittently while rifing, such as cyst busters like metronidazole or tinidazole. I just read Bryan Rosner’s book Lyme Disease and Rife Machines and he says this as well.

I’m doing a treatment protocol that increases the time and number of frequencies as you can tolerate it.  I’m following auto channels recommended to me. Auto channels cycle through groups of frequencies. I started with channel 466, then I added 467. I just added channel 468 on top of those two. That will cover about 100 frequencies against Lyme spirochetes, hatchlings, eggs, and Babesia. The nice thing about the GB-4000 is that it can run 8 frequencies at once, so you can cover a lot of ground.

As for my response, I had 30-hour flu-like herx responses to the treatments for a number of sessions. The herxes decreased so I added time and more frequencies until I herxed again. I just started the tinidazole, so we’ll see what that does to me…

Best,

Laura

Renewed Hope for Lyme Disease and Biotoxin Illness

Hello to All,

I met with my third doctor in three years on my ongoing quest for health. I was impressed by his comprehensive approach to my illness. Here is the gist of it:

  • I have Lyme Disease (he is my third doc to confirm this*) AND
  • I also have Babesia (diagnosed by symptoms. Testing is $$$ and not always helpful) AND
  • Poor phase 1 and 2 detoxification ability resulting in inadequate glutathione production
  • Inability to detox mold resulting in biotoxin illness (revealed by genetic testing)
  • Methylation defects – MTFHR and others
  • Ongoing yeast problems
  • Increased intestinal permeability (aka Leaky Gut syndrome)
  • High levels of lead and mercury (though they came down significantly with IV chelation)
  • Reduced liver function
  • Reduced thyroid and adrenal function

Now, I already knew most of this, but it’s refreshing to have someone put it all together at one time. Now we’ll see if he has solutions for my problems. I can only hope that this is the complete picture of my health problems and there are no others in hiding. I’m testing my metal levels and spending the next 5 weeks detoxing before proceeding with Babesia treatment. Here are a few meds and supplements that I’ll be adding to my regimen:

  • Apex Methyl-SP formula, containing high doses of B vitamins, TMG and choline (given by my current naturopath)
  • Researched Nutritionals Liposomal Glutathione
  • Cholestyramine
  • Diflucan every other day
  • Nystatin twice per day

I’m also experimenting with my diet. I mostly avoid gluten, dairy, and sugar, and now I’m cutting down on the meat and omitting beef and pork entirely. I must admit, I feel a little starved.

I feel a renewed sense of hope after meeting with him. But as they say, the proof of the pudding is in the eating. I’ll track my symptoms and report back.

Best,

Laura

* Note: I have a Lyme Disease diagnosis by two naturopaths and an MD whose specialty is treating Lyme, ME/CFS and similar conditions. I’ve thought about seeing an infectious disease doc, but I doubt I’ll get any assistance from one. My diagnosis does not meet CDC criteria.

Lyme Disease Treatment Frustration

Hello to All,

I usually like to write about new and innovative things pertaining to Lyme Disease and related illnesses. But this post is about frustration. I’ve gone through three years of treatment (including initial detox work), and I’m wondering if I’m making enough progress.

In 2012, I had a lovely remission for several months after detox and my first two herbal anti-microbials. I thought for sure I was on the right track. Then treatment with Byron White A-BART formula set me back considerably. Then I had an awful time during the winter while taking ketoconazole for yeast along with an enzyme from another doctor. That combination made me sicker than I’ve ever been in my life. I switched doctors and was stabilized for a while in the summer. But I’m once again struggling while taking an antimicrobial herbal concoction called Quintessence. I can’t seem to take it for more than a week at a time without feeling really bad. Maybe it’s more of an allergy than a herx? It’s hard to tell the difference.

My life is a constant roller coaster of fluctuating symptoms resulting in mild to serious disability. Unfortunately, most things that are supposed to make me feel better end up making me feel much worse.  I really need to hit a solid turn around point so that I can resume working and have a life again.

I boil it down to three problems:

  1. Poor detox ability
  2. Poor inflammation control
  3. Recurring yeast flare ups whenever I take an antimicrobial (even the herbal kind)

I started looking back to 2012 to see what I was doing that may have contributed to my good health for several months. I did:

  • IV chelation
  • a series of colonics
  • healing treatments and foods for the gut
  • Pekana Detoxification remedies for the liver, kidneys, and lymphatic system (Apo-hepat, Renelix, and Itires)
  • pharmaceutical and natural antifungals

This was all BEFORE starting Lyme meds. Then I started doing BioSET treatments. Perhaps I was properly detoxed and my organs of elimination were functioning well, and that enabled me to tolerate the Byron White A-BAB and A-L formulas. I will re-visit these strategies to see if they help.

I’m also considering pharmaceutical antibiotics treatment. Many Lyme docs say that they are necessary for recovery. I’m not saying they are the only important thing, just that most patients need them to recover in conjunction with other remedies. I’ve also been talking to other Lyme sufferers who felt that the ABX were an important piece for them.

I have an appointment next week to see Dr. R., an LLMD in Seattle who is supposed to be very skillful with ABX. I want a confirmation of my diagnosis and fresh eyes on my problems. He also has an impressive and comprehensive website with a free treatment manual that aims to help not only his patients, but patients who self-treat due to cost or lack of insurance. I hope he has some strategies for detox and combating inflammation so that I can make some real progress in 2014.

I’ll let you know how it goes. Wish me luck!

Laura

Lyme Disease Treatment Status

Hello to All,

I neglected my blog and email this summer. I suppose part of this is because I just wanted to enjoy myself and forget about being sick for a while (as much as that is possible). The other part is because I feel stuck, unmotivated, and frustrated. I’ve done hundreds of hours of research and feel that I know almost everything there is to know about this disease. I’ve been through almost 2 years of antimicrobial treatment and 1 year of serious detox before that. Though I’ve made a number of improvements, I’m still not well. In summary, my problems below the neck have improved considerably, but certain neurological problems have worsened.

I thought that this would be a good time to take stock of my healing progress. Here is the status on my symptoms:

Improvements:

  1. Headaches: lessened in severity and frequency, but still a problem 10 – 15 days per month
  2. Joint pain: gone
  3. Muscle pain: improved – occasional pain in right side of neck and shoulder ( I love Cryoderm topical for this)
  4. Irritable bowel: gone, or perhaps just being managed with magnesium and fiber?
  5. Depression: intermittent and milder (managed using exercise, 5-htp, l-tyrosine, and l-phenylalanine)
  6. Fatigue: improved from the past two years, but still a problem
  7. Vulvodynia: gone for months now
  8. Tooth pain: improved but still flares occasionally
  9. Food intolerance: much improved
  10. Chemical sensitivities: improved but still a problem
  11. Heat sensitivity: improved but I have to be careful
  12. Light sensitivity: started in 2011. Improved since then

Problematic or worsening symptoms:

  1. Dizziness/light headedness: a daily problem for me. This started with an episode of vertigo in 2011.
  2. Heart palpitations: a new problem that developed in December of 2012
  3. Anxiety: still a big problem, (especially when I get dizzy I tend to panic)
  4. Cognitive dysfunction: still a problem, especially decision making, organizing, and short term memory
  5. Insomnia: worsened in December

I summary, my symptoms still wax and wane. I have more pain-free days with good energy, very few days where I’m completely miserable and dysfunctional, lot of days where I just feel crummy and tired. The dizziness is my most disabling symptom at this time. I frequently cannot drive because of it.

So what the heck is going on?

My doctor ran some blood tests: ferritin, thyroid, thyroid antibodies, the usual blood work up, and a nutritional test called a Spectracell. My ferritin (iron storage) is rock bottom at 4.0, my thyroid is low, no thyroid antibodies (hurray!) and I have a few other abnormalities. I await the results of the Spectracell.

My new treatment plan:

  • Serious iron replacement
  • Boost thyroid with SSKI iodine. If not helpful, switch to thyroid meds
  • A new antimicrobial regimen using a tincture called Quintessence by Bio Pure. This contains herbs popularized by Stephen Buhner, including knotweed, stephania, andrograhis, red root, and smilax.
  • Teasel
  • Peony for blood

I’m starting very slowly, one herb at a time to determine tolerance. Wish me luck.

Until next time,

Laura