Hello To All,
I haven’t posted to my blog in months. I went through hell on antibiotics in the spring, and I felt like taking a break from it all this summer. On a positive note, I felt quite good from late June through August. Here is an update.
As I mentioned in the spring, I’ve been using a frequency generator (aka a Rife machine) for 12 months now to kill off the borrelia. My doctor is very supportive of this, but says that I need something to kill the dormant or cyst form of the infection. I tried grapefruit seed extract and that gave me horrendous headaches. Ditto for Samento and Banderol. I then tried Tinidazole. I lasted on that for three months and crashed hard with gut and yeast problems. I stopped the ABX, kept rifing and doing some serious detox over the summer and lo and behold, I felt pretty decent! In particular, I went back on three Pekana detox remedies (Apo-hepat, Itires, and Renelix). I’ve come to realize that these remedies are super helpful for me.
I started on the herb Cumanda this past month. I stopped it because it, too gave me horrendous headaches. My naturopath suggested that I try andrographis. According to Stephen Buhner, this herb also kills the cyst form of borrelia.
So, where am I after almost 4 years of treatment? I’m not yet recovered, but I have made progress. I’m just getting frustrated and impatient at how long this is taking. I want to go back to work. I want to have fun. I want my life back!
I was feeling a bit despondent this month. I went to see author Katina Makris talk about her recovery from Lyme. (She is the one who wrote Out of the Woods. She has a new book out and she is touring). I felt a renewed sense of hope after hearing her talk. Her recovery took a long time, too. But she’s doing great now!
I try to remain hopeful. I also try to remember that there are many pathways to healing from Lyme, and many people who do indeed recover. So I keep slogging away at it.
Hello to All,
I haven’t felt like writing in a while. I’ve been in a holding pattern waiting to see how I felt after several months of killing Borrelia with a Rife machine. This technology is pretty new to me and I’m trying to understand it better. I’m also trying to decide how much faith to put in a treatment that is so alternative.
When I last wrote, my doctor had put me on Teasel root. This herbal antimicrobial made me miserable even though I reduced my dose to 1/10 of a drop once per week. I had profound fatigue, headaches, muscle weakness, shakiness, and light-headedness even at this low dose. My doctor agreed with me that these were side effects and not worth it for me. We discussed alternate medications, especially ones that would be compatible with rifing. He suggested tinidazole.
According to people knowledgeable about Rife machines, using antibiotics is counterproductive to rifing. Antibiotics can cause resistance and drive the pathogens deeper into the tissues as they avoid exposure to the drugs. Certain ABX can be used intermittently while rifing, such as cyst busters like metronidazole or tinidazole. I just read Bryan Rosner’s book Lyme Disease and Rife Machines and he says this as well.
I’m doing a treatment protocol that increases the time and number of frequencies as you can tolerate it. I’m following auto channels recommended to me. Auto channels cycle through groups of frequencies. I started with channel 466, then I added 467. I just added channel 468 on top of those two. That will cover about 100 frequencies against Lyme spirochetes, hatchlings, eggs, and Babesia. The nice thing about the GB-4000 is that it can run 8 frequencies at once, so you can cover a lot of ground.
As for my response, I had 30-hour flu-like herx responses to the treatments for a number of sessions. The herxes decreased so I added time and more frequencies until I herxed again. I just started the tinidazole, so we’ll see what that does to me…
Posted in antibiotic treatment, energy medicine, herbal treatments, herxheimer reaction, medication intolerance, progress and updates, Rife Machine
Tagged antibiotics, chronic diseases, Herxheimer reaction, infectious diseases, Lyme Disease, Lyme Disease Treatment, Rife Machine
Hello to All,
I met with my third doctor in three years on my ongoing quest for health. I was impressed by his comprehensive approach to my illness. Here is the gist of it:
- I have Lyme Disease (he is my third doc to confirm this*) AND
- I also have Babesia (diagnosed by symptoms. Testing is $$$ and not always helpful) AND
- Poor phase 1 and 2 detoxification ability resulting in inadequate glutathione production
- Inability to detox mold resulting in biotoxin illness (revealed by genetic testing)
- Methylation defects – MTFHR and others
- Ongoing yeast problems
- Increased intestinal permeability (aka Leaky Gut syndrome)
- High levels of lead and mercury (though they came down significantly with IV chelation)
- Reduced liver function
- Reduced thyroid and adrenal function
Now, I already knew most of this, but it’s refreshing to have someone put it all together at one time. Now we’ll see if he has solutions for my problems. I can only hope that this is the complete picture of my health problems and there are no others in hiding. I’m testing my metal levels and spending the next 5 weeks detoxing before proceeding with Babesia treatment. Here are a few meds and supplements that I’ll be adding to my regimen:
- Apex Methyl-SP formula, containing high doses of B vitamins, TMG and choline (given by my current naturopath)
- Researched Nutritionals Liposomal Glutathione
- Diflucan every other day
- Nystatin twice per day
I’m also experimenting with my diet. I mostly avoid gluten, dairy, and sugar, and now I’m cutting down on the meat and omitting beef and pork entirely. I must admit, I feel a little starved.
I feel a renewed sense of hope after meeting with him. But as they say, the proof of the pudding is in the eating. I’ll track my symptoms and report back.
* Note: I have a Lyme Disease diagnosis by two naturopaths and an MD whose specialty is treating Lyme, ME/CFS and similar conditions. I’ve thought about seeing an infectious disease doc, but I doubt I’ll get any assistance from one. My diagnosis does not meet CDC criteria.
Posted in antibiotic treatment, babesia, detoxification, Lyme literate physicians, methylation, mold toxicity, progress and updates
Tagged Candida, chronic diseases, detox, Health, infectious diseases, Lyme Disease, Lyme Disease Treatment
Hello to All,
I usually like to write about new and innovative things pertaining to Lyme Disease and related illnesses. But this post is about frustration. I’ve gone through three years of treatment (including initial detox work), and I’m wondering if I’m making enough progress.
In 2012, I had a lovely remission for several months after detox and my first two herbal anti-microbials. I thought for sure I was on the right track. Then treatment with Byron White A-BART formula set me back considerably. Then I had an awful time during the winter while taking ketoconazole for yeast along with an enzyme from another doctor. That combination made me sicker than I’ve ever been in my life. I switched doctors and was stabilized for a while in the summer. But I’m once again struggling while taking an antimicrobial herbal concoction called Quintessence. I can’t seem to take it for more than a week at a time without feeling really bad. Maybe it’s more of an allergy than a herx? It’s hard to tell the difference.
My life is a constant roller coaster of fluctuating symptoms resulting in mild to serious disability. Unfortunately, most things that are supposed to make me feel better end up making me feel much worse. I really need to hit a solid turn around point so that I can resume working and have a life again.
I boil it down to three problems:
- Poor detox ability
- Poor inflammation control
- Recurring yeast flare ups whenever I take an antimicrobial (even the herbal kind)
I started looking back to 2012 to see what I was doing that may have contributed to my good health for several months. I did:
- IV chelation
- a series of colonics
- healing treatments and foods for the gut
- Pekana Detoxification remedies for the liver, kidneys, and lymphatic system (Apo-hepat, Renelix, and Itires)
- pharmaceutical and natural antifungals
This was all BEFORE starting Lyme meds. Then I started doing BioSET treatments. Perhaps I was properly detoxed and my organs of elimination were functioning well, and that enabled me to tolerate the Byron White A-BAB and A-L formulas. I will re-visit these strategies to see if they help.
I’m also considering pharmaceutical antibiotics treatment. Many Lyme docs say that they are necessary for recovery. I’m not saying they are the only important thing, just that most patients need them to recover in conjunction with other remedies. I’ve also been talking to other Lyme sufferers who felt that the ABX were an important piece for them.
I have an appointment next week to see Dr. R., an LLMD in Seattle who is supposed to be very skillful with ABX. I want a confirmation of my diagnosis and fresh eyes on my problems. He also has an impressive and comprehensive website with a free treatment manual that aims to help not only his patients, but patients who self-treat due to cost or lack of insurance. I hope he has some strategies for detox and combating inflammation so that I can make some real progress in 2014.
I’ll let you know how it goes. Wish me luck!
Hello to All,
I neglected my blog and email this summer. I suppose part of this is because I just wanted to enjoy myself and forget about being sick for a while (as much as that is possible). The other part is because I feel stuck, unmotivated, and frustrated. I’ve done hundreds of hours of research and feel that I know almost everything there is to know about this disease. I’ve been through almost 2 years of antimicrobial treatment and 1 year of serious detox before that. Though I’ve made a number of improvements, I’m still not well. In summary, my problems below the neck have improved considerably, but certain neurological problems have worsened.
I thought that this would be a good time to take stock of my healing progress. Here is the status on my symptoms:
- Headaches: lessened in severity and frequency, but still a problem 10 – 15 days per month
- Joint pain: gone
- Muscle pain: improved – occasional pain in right side of neck and shoulder ( I love Cryoderm topical for this)
- Irritable bowel: gone, or perhaps just being managed with magnesium and fiber?
- Depression: intermittent and milder (managed using exercise, 5-htp, l-tyrosine, and l-phenylalanine)
- Fatigue: improved from the past two years, but still a problem
- Vulvodynia: gone for months now
- Tooth pain: improved but still flares occasionally
- Food intolerance: much improved
- Chemical sensitivities: improved but still a problem
- Heat sensitivity: improved but I have to be careful
- Light sensitivity: started in 2011. Improved since then
Problematic or worsening symptoms:
- Dizziness/light headedness: a daily problem for me. This started with an episode of vertigo in 2011.
- Heart palpitations: a new problem that developed in December of 2012
- Anxiety: still a big problem, (especially when I get dizzy I tend to panic)
- Cognitive dysfunction: still a problem, especially decision making, organizing, and short term memory
- Insomnia: worsened in December
I summary, my symptoms still wax and wane. I have more pain-free days with good energy, very few days where I’m completely miserable and dysfunctional, lot of days where I just feel crummy and tired. The dizziness is my most disabling symptom at this time. I frequently cannot drive because of it.
So what the heck is going on?
My doctor ran some blood tests: ferritin, thyroid, thyroid antibodies, the usual blood work up, and a nutritional test called a Spectracell. My ferritin (iron storage) is rock bottom at 4.0, my thyroid is low, no thyroid antibodies (hurray!) and I have a few other abnormalities. I await the results of the Spectracell.
My new treatment plan:
- Serious iron replacement
- Boost thyroid with SSKI iodine. If not helpful, switch to thyroid meds
- A new antimicrobial regimen using a tincture called Quintessence by Bio Pure. This contains herbs popularized by Stephen Buhner, including knotweed, stephania, andrograhis, red root, and smilax.
- Peony for blood
I’m starting very slowly, one herb at a time to determine tolerance. Wish me luck.
Until next time,