Category Archives: vulvodynia

Lyme Disease and Yeast: A Positive Update

Hello To All,

I know that I have a tendency to post when I feel poorly, so I think it’s high time for a positive update. Here it is: I feel pretty darn good! There are three things to which I can attribute this change:

1. My doc put me back on pharmaceuticals for yeast – indefinitely:

  • Diflucan, 200mg 1x per week
  • Nystatin, 1,000,000 IU 2x per day
  • Amphotericin B, 3X per day.

I started feeling better after a couple of weeks on this protocol. No more burning vulvodynia, fewer digestive problems, fewer headaches, less chemical sensitivity.

2. I started taking a low dose of Maca for the adrenals. Maca has turned out to be a wonder herb for me. My energy is much better and I feel more vigorous than I have in years. It is also beneficial for the libido, as people say it is.

3. I changed my diet (yet again). After years of being quite thin, I started gaining weight in my midsection after prolonged courses of ABX. That in combination with an obvious yeast problem made me seek out another low-carb diet. I started the Dukan Diet which is high protein, low fat, and low carb. Not only have I lost about seven pounds, but I feel much better on this diet. If I adhere to the diet, I have NO headaches and NO digestive problems, and NO bloating. I’m also in a better mood. Supposedly protein is beneficial for mood, and I think that’s true.

I have NO dizziness, vertigo, or lightheadedness. I have NO joint or muscle pain. I can drive for hours without problems, even on the highway. My mood has really improved, despite recent difficulties in the lives of my loved ones. I also feel mentally sharper. I recently made some art. I am even looking for a permanent job instead of little temporary ones. That’s a lot of improvement since the summer.

To follow up on my last post, I decided to try the Cutler heavy metals protocol. I tried low-dose DMSA but it flared the yeast. I’m switching to low-dose DMPS (which I’ve had before via I.V. Tx) I’ll let you know how that goes.

I continue to use a GB-4000 frequency generator for Borrelia and co-infections. I also started using it for fungus. I’ll see how that goes.

As I’ve said before, I believe that yeast/fungus is the big problem for me at this point. I think that diet, a long term killing protocol, chelation, and biofilm treatment are the keys to returning to health for me. Wish me luck!

Best,

Laura

 

#Lyme Disease, Allergies, and Self-Treating with BioSET

Hello to All,

In my previous posts I’ve talked about how much energy medicine has helped me deal with problems caused by chronic Lyme Disease. NAET and Bioset treatments are especially useful in reducing or eliminating my numerous intolerances to foods, chemicals, and medications. They also help with strange symptoms that no one else can figure out, like painful cracked lips or vulvodynia. I sometimes still can’t believe that I’ve become a convert to energy medicine. My Western, scientific mind has trouble with it, but I can’t deny its effectiveness for me.

I’m fortunate to have a practitioner near my home. For those of you who don’t, here is a YouTube video from Bioset’s founder, Dr. Ellen Cutler. She demonstrates muscle testing and desensitization techniques you can do at home.

http://www.youtube.com/watch?v=f0KHdsW6G7E

I haven’t had success muscle testing myself, but I’ve certainly had success treating myself numerous times. It works on a principle similar to homeopathy or allergy injections. Exposing a person to a minute dilution of a substance gradually desensitizes them. Here is how the treatment works:

  • Hold the offending substance in your hand, or place it in a jar if it’s particularly noxious to you.
  • Tap yourself down and up the spine 4 times while following a breathing pattern.
  • Hold the substance for approximately 15 minutes.
  • Avoid the offending substance for 25 hours for the basic home treatment or 2 hours for a booster of a Bioset treatment.
  • Repeat if needed.

I’m impressed with the fact that Dr. Cutler shares this information publicly. Those of us who are sick and hypersensitive would spend an awful lot of money if they needed a professional treatment every time they had a problem.

Laura

#Lyme Disease and Vulvodynia

Vulvodynia is chronic pain in the area around the opening of the vagina that occurs even when there is no obvious sign of infection or irritation. The pain can be so bad that it makes sitting or wearing pants uncomfortable. And sex can be downright unbearable. Conventional medicine does not understand the cause of this problem. Hormone replacement therapy, physical therapy, and trigger point injections are treatments commonly available. There are also self-care guidelines that can help make it more bearable, but do not cure it.

I’ve suffered from this condition on and off for about thirteen years. I tried biofeedback, multiple short duration yeast treatments, antidepressants, hormone replacement, and topical lidocaine gel. None was helpful. However, the pain has improved markedly in the last two years, and I want to share the things that worked for me.

Treat Chronic, Systemic Candida Infection

Few doctors understand how candida can cause problems even after a course of treatment. I found the work of Elmer Cranton, MD, http://drcranton.com/ and http://www.fungusfocus.com/html/triple_rx_treatment_strategy.htm and Marjorie Crandall, PhD, http://yeastconsulting.com to be helpful. Persistent or systemic candida means that the body is out of balance and can be a symptom of a larger problem (as those of us with Lyme Disease know). It can also mean that some species of candida were treated, but the more virulent ones remain and continue to cause problems.

Dr. Cranton advocates triple antifungal therapy to increase the chances of killing off multiple strains of this fungus. After trying natural antifungals to no avail, I finally asked my naturopath to try this therapy in 2012. For a minimum of three months I took:

  • Diflucan
  • Nystatin
  • Oral Amphotericin B

I had no side effects, and no liver problems while on this protocol. Please note: none of these drugs will kill off all the fungus, but can bring the load down to a manageable level. Maintaining a healthy anti-yeast diet and taking effective probiotics (i.e. ones that actually colonize the gut) are also important.

Chinese Medicine

Acupuncture and a Chinese herbal solution called Yin Care (http://www.yincare.com/) were also very helpful for me. Chinese medicine views vulvodynia as a condition of dampness, heat, and pathogenic organisms. Yin Care contains a number of herbs to combat pathogens and lower inflammation. Dilute it 1:1 or weaker, saturate a large cotton ball, and apply as a compress as often as needed until the discomfort subsides. This stuff works like a charm for me. I keep a bottle on hand just in case.

Energy Medicine: NAET and BioSET

These treatments use the approach of desensitizing the body from allergens. We can become “allergic” to anything, but especially to things that we are exposed to regularly. After prolonged antifungal therapy, my Bioset practitioner treated me for candida sensitivity, and also suggested that other substances can be causing the discomfort down there. Cotton and urine are also two common triggers of vulvodynia! Both of these things are rather hard to avoid, right? Going pantyless at night and rinsing after urination are helpful. Semen can also be an irritant for some women.

The nice thing about NAET and Bioset techniques is that you can treat yourself at home. I’ll talk more about this in my next post.

I hope his information is helpful to other women with this miserable condition.

Best,

Laura