Tag Archives: chronic pain

Lyme Disease, Yeast, and Heavy Metals

Hello Again,

The yeast has returned… Just when I think I have it licked, it comes back. I’ve been through numerous courses of natural and pharmaceutical antifungal treatment and I maintain a good diet, but it always comes back after a couple of months. My doc figures that it’s a biofilm problem, so I’m back on enzymes.

Over the years I’ve experimented with many systemic enzymes for biofilm and yeast. By far the most difficult one is Interfase Plus with EDTA. Which got me thinking… State of the art biofilm treatment involves a chelating agent, like EDTA or lactoferrin, to pull the metals from the biofilm to help degrade it. Yeast and mercury, in particular, have an affinity for one another.

I did 11 months of intravenous chelation with EDTA and DMPS in 2010/2011. It reduced my lead and mercury levels substantially (and my bank account, too). However, my last test revealed that I still have some lead and mercury in me. My doctor says that amount shouldn’t be a problem, but others say any mercury in the body is a problem. I’ve heard people with chronic yeast say that it didn’t go away until they removed the ALL of the dangerous metals. So I’m going forth with more chelation.

In my research, I came across people online and in my Lyme community who use the low and frequent dose protocol developed by Andrew Cutler, PhD, a chemist. See http://www.noamalgam.com/ or www.livingnetwork.co.za. His protocol involves taking low doses of either DMPS or DMSA and later adding alpha lipoic acid (ALA) to clear mercury from the brain. His protocol has several important differences from the others.

  • Instead of taking high dose chelating agents once or twice per month, you take a low dose around the clock for several days in a row. This minimizes redistribution of the metals after the drugs wear off.
  • You must also take ALA which crosses the blood brain barrier.
  • You can do this protocol on your own at home.
  • The protocol is inexpensive.

Any chelation therapy has its risks, but his approach seems safe and logical to me. Also, this protocol is often done with young children who have autism. I’m reading as much as I can about the protocol and deciding if I want to do it. I’ll keep you all posted if and when I start.

Best,

Laura

Lyme Disease and Frequency (Rife Machine) Therapy

This year I underwent 5 months of antibiotic treatment for Borrelia and Babesia. I think it did me some good as the dizziness and vertigo subsided. Unfortunately, I wound up with digestive problems, increased fatigue, and depression after the ABX. My doctor rotated me onto herbs. Both Samento and Banderol (cat’s claw and otoba) gave me wicked headaches. I’m now on teasel root and it really wipes me out, even at a low dose of 1 drop every three days.

I also finally decided to try frequency therapy (aka a Rife machine) to help kill off the spirochetes. Members of my local Lyme Disease community who recovered said that this was an important part of their treatment. They also said that it caused a definite herx reaction. I wanted to know what a true herx felt like, as opposed to a medication side effect.

For those of you unfamiliar with so-called Rife machines, here is the lowdown. Dr. Royal Raymond Rife was an American scientist who built the first high powered microscope in the 1930’s. He also discovered that all organisms have their own electromagnetic “signature” – a specific pattern of oscillation. He then discovered that viruses, bacteria, parasites, and even cancer cells could be destroyed by intensifying those frequencies until the organisms explode, just as an intense musical note can shatter a wine glass. Dr. Rife then invented a frequency machine to vibrate and destroy the organisms. His original technology was lost (not an accident according to those who believe it was an act of pharmaceutical company sabotage) but modern replicas exist.

Proponents of frequency therapy say there are benefits. No antibiotic resistance. Penetration into deep areas of the body that ABX miss, such as the brain. No side effects. No toxicity. No damage to beneficial flora. No yeast overgrowth. But this therapy is considered experimental and alternative. It is not FDA approved. Your doctor will not tell you about it for fear of risking their medical license. When I asked my doctor about it he said it was a good thing to do – unofficially, of course.

I started using this therapy weekly in September. I’m using a GB 4000 frequency generator with a MOPA (Master Oscillator Power Amplifier) and a plasma tube. I get what seems to be a true herx response: aches, profound fatigue, mild fever. I don’t get my typical toxicity headache. This lasts for about 30 hours and then subsides.

After my initial experiment killing Borrelia spirochetes with frequency, I’m now following an established 7-day frequency protocol to kill Candida. My first treatment left me feeling exhausted and achy, so I’m assuming it’s doing something. I’ll keep at it and see what happens.

Until next time…

Laura

#Lyme Disease and Vulvodynia

Vulvodynia is chronic pain in the area around the opening of the vagina that occurs even when there is no obvious sign of infection or irritation. The pain can be so bad that it makes sitting or wearing pants uncomfortable. And sex can be downright unbearable. Conventional medicine does not understand the cause of this problem. Hormone replacement therapy, physical therapy, and trigger point injections are treatments commonly available. There are also self-care guidelines that can help make it more bearable, but do not cure it.

I’ve suffered from this condition on and off for about thirteen years. I tried biofeedback, multiple short duration yeast treatments, antidepressants, hormone replacement, and topical lidocaine gel. None was helpful. However, the pain has improved markedly in the last two years, and I want to share the things that worked for me.

Treat Chronic, Systemic Candida Infection

Few doctors understand how candida can cause problems even after a course of treatment. I found the work of Elmer Cranton, MD, http://drcranton.com/ and http://www.fungusfocus.com/html/triple_rx_treatment_strategy.htm and Marjorie Crandall, PhD, http://yeastconsulting.com to be helpful. Persistent or systemic candida means that the body is out of balance and can be a symptom of a larger problem (as those of us with Lyme Disease know). It can also mean that some species of candida were treated, but the more virulent ones remain and continue to cause problems.

Dr. Cranton advocates triple antifungal therapy to increase the chances of killing off multiple strains of this fungus. After trying natural antifungals to no avail, I finally asked my naturopath to try this therapy in 2012. For a minimum of three months I took:

  • Diflucan
  • Nystatin
  • Oral Amphotericin B

I had no side effects, and no liver problems while on this protocol. Please note: none of these drugs will kill off all the fungus, but can bring the load down to a manageable level. Maintaining a healthy anti-yeast diet and taking effective probiotics (i.e. ones that actually colonize the gut) are also important.

Chinese Medicine

Acupuncture and a Chinese herbal solution called Yin Care (http://www.yincare.com/) were also very helpful for me. Chinese medicine views vulvodynia as a condition of dampness, heat, and pathogenic organisms. Yin Care contains a number of herbs to combat pathogens and lower inflammation. Dilute it 1:1 or weaker, saturate a large cotton ball, and apply as a compress as often as needed until the discomfort subsides. This stuff works like a charm for me. I keep a bottle on hand just in case.

Energy Medicine: NAET and BioSET

These treatments use the approach of desensitizing the body from allergens. We can become “allergic” to anything, but especially to things that we are exposed to regularly. After prolonged antifungal therapy, my Bioset practitioner treated me for candida sensitivity, and also suggested that other substances can be causing the discomfort down there. Cotton and urine are also two common triggers of vulvodynia! Both of these things are rather hard to avoid, right? Going pantyless at night and rinsing after urination are helpful. Semen can also be an irritant for some women.

The nice thing about NAET and Bioset techniques is that you can treat yourself at home. I’ll talk more about this in my next post.

I hope his information is helpful to other women with this miserable condition.

Best,

Laura

 

 

Is #Lyme Disease Sexually Transmissible?

Hello to All,

Those of us with chronic Lyme Disease don’t want to hear this, but some scientists say that this infection can be transmitted sexually. A new study by an international team of scientists found the bacteria in vaginal secretions and seminal fluids, suggesting that sexual transmission of the disease occurs. Their findings are presented in the January issue of the Journal of Investigative Medicine.

http://lymedisease.org/news/lyme_disease_views/lyme-sexual-transmission.html

I have been ill for 15 years with this disease, and my spouse and I have been together for longer than that. So far he doesn’t show any symptoms. But I always wonder if it’s there, lying in wait for his immune system to weaken. I fear this greatly. One sick person in the house is bad enough. Two ill people would be devastating. I know of entire families who have Lyme Disease.

Have I killed off enough of this infection so as not to be contagious? Should we actually start using protection during sex NOW after all these years? (No way, we both decided). I think it more reasonable for him to be tested and treated if necessary. There are also immune enhancing substances and herbs that can be used for prevention. (Stephen Buhner suggests astragalus as a good one for prevention and early treatment). But for new sexual partners, using protection sounds like a good idea (for many reasons, of course).

The implications of this study are alarming. The transmission through bodily fluids means a much greater incidence of this disease than most thought possible. It means that sexual partners can get it from one another, and that mothers can pass it to their unborn children. Though the CDC denies it, this disease may truly become an epidemic, if it is not one already.

That’s enough for now. I’m getting rather depressed thinking about it.

-Laura

#Lyme Disease Treatment: Herx or Medication Intolerance?

Hi All,

I’m very pleased today. I talked with my doctor and he thinks that the discomfort caused by the grapefruit seed extract wasn’t a herxheimer reaction, it was intolerance. I didn’t know that you could tell the difference, but he says there are clues. In general the guidelines are:

  • A herx reaction is generally marked by multiple symptoms such as malaise, muscle pain, fatigue, headache, and a flu-like feeling that lasts for weeks.
  • Medication intolerance is generally marked by isolated symptoms that resolve quickly upon discontinuing the medication.

I had intense headaches on GSE, even at very small doses. That shouldn’t happen. Also, the HA’s stopped immediately when I stopped the GSE. So I was intolerant! He suggested alternate cyst busting drugs:

  1. Metronidazole (I used this years ago and it caused awful nausea)
  2. Tinidazole (extremely expensive: $700/month)
  3. Rifampin (can cause liver problems. I know someone this happened to)
  4. Fluconazole, aka Diflucan. (This is my best option. I already take it for yeast problems, and it agrees with me. It isn’t as strong as the others, but I can take it for a prolonged period).

The nice news is that I feel good on my current regimen without the GSE. My headaches and neck pain are pretty much gone. I haven’t noticed bad night sweats. My energy level is improving. So this sounds like my magic combination for a while. I have a few other problems to solve, such as insomnia, chemical sensitivities, allergies, and periodic vulvodynia. But I’m relieved and I feel very hopeful that I’m on the right path.

The plan is to treat the Babesia for a minimum of 4 months, and stay on the ABX for Lyme for a while. Then I’ll switch over to herbals, probably for the long haul. I understand that long term maintenance is probably required for me. I accept the fact that I probably won’t be cured, but can achieve long term remission and live a “normal” life. I will be thrilled if this happens.

Best,

Laura

#Lyme Disease/Babesia Treatment: Antibiotics and GSE

Hello to All,

Three weeks ago, I started ABX treatment with Biaxin and Malarone, and I was doing pretty well. My energy is still low and I’m still having wicked bad insomnia (probably related), but my headaches and neck pain subsided! I’ll take any victory that I can get.

Then I added grapefruit seed extract (GSE) into the mix per my doctor’s instructions, 250 mg 2x/day.

Wham! The herx hit me. Daily migraines, lightheadedness, dizziness, worsening fatigue, trouble finding my breath at the slightest exertion. So I did my usual routine of detox and aklalinization:

  1. Lessen the dose of the offending medicine until tolerable
  2. Vitamin C
  3. Alka Seltzer Gold
  4. Lemon water
  5. Coffee enemas
  6. Epsom salt baths

GSE is known to break up biofilms and cysts where the infections hide. I’d say that it’s effective!

So my body has calmed down considerably. I reduced my dose of GSE to ½ of a 125mg pill per day. I will work up slowly as tolerated. My goals now are to:

1) Find the dose of GSE that challenges me without totally disabling me, and,

2) Keep trying sleep medications until I find one that is effective. (Unfortunately, the Trazodone I was using ceased to be effective after a few months).

So I trudge forward…

Best,

Laura

Lyme Disease Treatment and Fatigue

Hello All,

As I mentioned in a previous post, I started taking a new herbal antimicrobial  tincture called Quintessence from Bio Pure (Dr. Klinghardt’s company). This tincture contains five herbs popularized by the herbalist Stephen Buhner:

1)      Andrographis (modulates autoimmunity, protects heart tissue, and is anti-inflammatory for the central nervous system)

2)      Japanese Knotweed (antibacterial, anti-inflammatory, immune modulating, antioxidant)

3)      Ceanothus (for coagulation problems, sluggishness in the spleen, liver, and lymphatics. Also antimicrobial for certain coinfections like Bartonella.)

4)      Smilax

5)      Stephania (powerful for eye and ear involvement, balance problems, Bell’s palsy,  anti-inflammatory,

I started at 1 drop per day and am slowly working my way up to 30 drops 3x per day as directed. I’m happy to say that it didn’t disagree with me for the first few weeks. Then as I approached 20 drops 3x per day, Wham! The fatigue and malaise hit me like a city bus. I assume that I’ve hit a therapeutic dose and am experiencing die-off, aka, a Herxheimer reaction.

When you tell healthy people that you have fatigue, they say, “Oh yes, I get tired sometimes, too.”

Ahem. I politely try to explain to them the fatigue associated with Lyme Disease and die-off.  I say, “Remember when you had the flu? Remember how you couldn’t get off the couch for more than a few minutes and then you had to lie down again? And you felt like crap? Yah, it’s like that… but for days and weeks on end.”

Usually, my fatigue is mild. I have about 4 productive hours a day, then I have to rest in the afternoon,  take a short nap, and then I have some functionality in the evening again. But this time the fatigue is crushing. I may have a few mildly productive hours in the morning, and then I’m through. I HAVE to lie down. Ugh. I know some of you out there have it way worse than me, and my heart goes out to you.

I know that low thyroid and poor adrenal function also contribute to the fatigue. Unfortunately, when I take T3/T4 thyroid meds or certain herbs for adrenals, they are far too stimulating for me and exacerbate the heart palpitations. I’ll write more on this subject next time.

So what to do now?

  • Back off the Quintessence
  • Step up the detox with binders and vitamin C, use a sauna, etc…
  • Start taking Eleuthero (Siberian Ginseng) for adrenals and fatigue (given to me by my doctor)
  • Take Co Q 10 and L-Carnitine for cellular energy production and cardiovascular support.
  • Have a Bioset treatment. This can really calm a bad Herx reaction for me.

And when I feel bad enough I take Tramadol as needed. Tramadol is one of my rescue medications. Not only is it great for acute headaches and body pain, but it works wonders for feelings of general malaise and misery.

Best,

Laura