Tag Archives: Health

Renewed Hope for Lyme Disease and Biotoxin Illness

Hello to All,

I met with my third doctor in three years on my ongoing quest for health. I was impressed by his comprehensive approach to my illness. Here is the gist of it:

  • I have Lyme Disease (he is my third doc to confirm this*) AND
  • I also have Babesia (diagnosed by symptoms. Testing is $$$ and not always helpful) AND
  • Poor phase 1 and 2 detoxification ability resulting in inadequate glutathione production
  • Inability to detox mold resulting in biotoxin illness (revealed by genetic testing)
  • Methylation defects – MTFHR and others
  • Ongoing yeast problems
  • Increased intestinal permeability (aka Leaky Gut syndrome)
  • High levels of lead and mercury (though they came down significantly with IV chelation)
  • Reduced liver function
  • Reduced thyroid and adrenal function

Now, I already knew most of this, but it’s refreshing to have someone put it all together at one time. Now we’ll see if he has solutions for my problems. I can only hope that this is the complete picture of my health problems and there are no others in hiding. I’m testing my metal levels and spending the next 5 weeks detoxing before proceeding with Babesia treatment. Here are a few meds and supplements that I’ll be adding to my regimen:

  • Apex Methyl-SP formula, containing high doses of B vitamins, TMG and choline (given by my current naturopath)
  • Researched Nutritionals Liposomal Glutathione
  • Cholestyramine
  • Diflucan every other day
  • Nystatin twice per day

I’m also experimenting with my diet. I mostly avoid gluten, dairy, and sugar, and now I’m cutting down on the meat and omitting beef and pork entirely. I must admit, I feel a little starved.

I feel a renewed sense of hope after meeting with him. But as they say, the proof of the pudding is in the eating. I’ll track my symptoms and report back.

Best,

Laura

* Note: I have a Lyme Disease diagnosis by two naturopaths and an MD whose specialty is treating Lyme, ME/CFS and similar conditions. I’ve thought about seeing an infectious disease doc, but I doubt I’ll get any assistance from one. My diagnosis does not meet CDC criteria.

Lyme Disease Treatment Frustration

Hello to All,

I usually like to write about new and innovative things pertaining to Lyme Disease and related illnesses. But this post is about frustration. I’ve gone through three years of treatment (including initial detox work), and I’m wondering if I’m making enough progress.

In 2012, I had a lovely remission for several months after detox and my first two herbal anti-microbials. I thought for sure I was on the right track. Then treatment with Byron White A-BART formula set me back considerably. Then I had an awful time during the winter while taking ketoconazole for yeast along with an enzyme from another doctor. That combination made me sicker than I’ve ever been in my life. I switched doctors and was stabilized for a while in the summer. But I’m once again struggling while taking an antimicrobial herbal concoction called Quintessence. I can’t seem to take it for more than a week at a time without feeling really bad. Maybe it’s more of an allergy than a herx? It’s hard to tell the difference.

My life is a constant roller coaster of fluctuating symptoms resulting in mild to serious disability. Unfortunately, most things that are supposed to make me feel better end up making me feel much worse.  I really need to hit a solid turn around point so that I can resume working and have a life again.

I boil it down to three problems:

  1. Poor detox ability
  2. Poor inflammation control
  3. Recurring yeast flare ups whenever I take an antimicrobial (even the herbal kind)

I started looking back to 2012 to see what I was doing that may have contributed to my good health for several months. I did:

  • IV chelation
  • a series of colonics
  • healing treatments and foods for the gut
  • Pekana Detoxification remedies for the liver, kidneys, and lymphatic system (Apo-hepat, Renelix, and Itires)
  • pharmaceutical and natural antifungals

This was all BEFORE starting Lyme meds. Then I started doing BioSET treatments. Perhaps I was properly detoxed and my organs of elimination were functioning well, and that enabled me to tolerate the Byron White A-BAB and A-L formulas. I will re-visit these strategies to see if they help.

I’m also considering pharmaceutical antibiotics treatment. Many Lyme docs say that they are necessary for recovery. I’m not saying they are the only important thing, just that most patients need them to recover in conjunction with other remedies. I’ve also been talking to other Lyme sufferers who felt that the ABX were an important piece for them.

I have an appointment next week to see Dr. R., an LLMD in Seattle who is supposed to be very skillful with ABX. I want a confirmation of my diagnosis and fresh eyes on my problems. He also has an impressive and comprehensive website with a free treatment manual that aims to help not only his patients, but patients who self-treat due to cost or lack of insurance. I hope he has some strategies for detox and combating inflammation so that I can make some real progress in 2014.

I’ll let you know how it goes. Wish me luck!

Laura

Lyme Less Live More Event Sept. 18 – 20, 2013

Hello to All,

I just found out about this global online summit called Lyme Less Live More,  produced by Brent Martin and Dana Walsh (from the documentary “Under Our Skin”).

Lyme Less Live More is a FREE 3 day long online event that will broadcast over 12 interviews with today’s leaders in transformational health and healing. Speakers include Dr. Dietrich Klinghardt, Dr. Beth McDougall, author Connie Strasheim and more.

The interviews will be broadcast, on a schedule, from September 18 to September 20.

http://lymelesslivemore.com/

Best,

Laura

Lyme Disease Far More Common Than Previously Known

Hello to All,

This is probably not news to my fellow Lyme Disease sufferers out there, but I’m happy to see that this disease is getting more exposure in the media. Even the stalwart CDC is admitting that there are more cases than they thought.

Here is a link to an article from NPR.org

http://www.npr.org/blogs/health/2013/08/19/213544183/lyme-disease-far-more-common-than-previously-known

Best,

Laura

#Lyme Disease and the Methylation Cycle

I’m feeling better than I was last week. My intense detox has subsided, and I’ve resumed my usual relentless research of this miserable illness. Here is yet another piece.

The importance of repairing the methylation cycle in treating Lyme Disease.

Lyme Disease may start out as an infection, but left untreated, it causes many systemic imbalances and deficiencies in the body. Effective treatment of LD must include both antimicrobial therapy and support/repair of a number of the body’s systems. The methylation cycle is one of those systems that becomes impaired by LD.

What is the Methylation Cycle?

The methylation cycle is a biochemical cycle that’s involved in many of the body’s functions. When the cycle is broken, important functions are impaired. In particular, glutathione (our body’s master anti-oxidant and detox agent) is depleted. Rich van Konynenburg, Ph.D., an independent researcher who has done much research on ME/CFS syndromes, believes that glutathione depletion causes many of the problems in ME/CFS. Other prominent LLMD’s, such as Dietrich Klinghardt, also believe that this cycle must be functioning before recovery from Lyme Disease is possible.

Dr. van Konynenburg identified a number of functions involved in the methylation cycle:

  • To produce vital molecules such as Co Q-10 and carnitine.
  • To switch on DNA and switch off DNA. Note: When viruses attack our bodies, they take over our own DNA in order to replicate themselves. Disability of this function makes us more susceptible to viral infection.
  • To produce myelin for the brain and nervous system.
  • To control the liver’s synthesis of glutathione (essential for detoxification).
  • To control the sulphur metabolism of the body, (also important for detoxification).
  • As part of folic acid metabolism.

If the methylation cycle doesn’t work, the immune system, the detoxification system, and the anti-oxidant system all mal-function. Consequently, our body’s ability to repair is reduced.

A great website for information on ME/CFS (Myalgic Encephalomyelitis and Chronic Fatigue Syndrome) and Dr. van Konyenburg’s research is http://phoenixrising.me/.  Also see http://www.drmyattswellnessclub.com/B12MECFSarticle.htm.

Here is a fairly simple diagram on the Methylation Cycle from the Linus Pauling Institute

Methylation Cycle from the Linus Pauling Institute

Dr. Amy Yasko is another pioneer in methylation research and its role in autism. Here is a diagram from her website that helps illustrate the functions of the methylation cycle:

methylation diagram Yasko

http://www.dramyyasko.com/methylation-diagram/

Deficiency of this system is now implicated in autism, chronic fatigue syndrome, Hepatitis C, Gulf War Syndrome, and in Lyme Disease. Perhaps this is a factor in many illnesses we do not yet understand.

Treatment

The cornerstones of treatment are detoxification and specific nutrients:

  • activated forms of vitamins B12
  • activated folic acid (folate)
  • glutathione
  • phosphatidyl serine

My doctor has me on moderate doses of methylated B12 and methylfolate to start, as well as L-carnitine and Co Q 10 for energy. Recently, my energy has increased (I no longer need a nap every day) and I no longer need a thyroid supplement. Starting slowly is key, as repairing the methylation cycle puts the immune system back “on line”, which can lead to intense detox/die off reactions.

Once again, we find another piece of the already complicated puzzle of Lyme Disease.

-Laura

#Lyme Disease Nutrient Spotlight: Butyrate

I want to share one of my favorite supplements for managing symptoms related to Lyme Disease called Butyrate.

I’m a chronic headache sufferer, and my most frequent trigger for headaches is eating. I used to think food sensitivities were the problem, but I got to the point where eating solid food of any kind caused me a headache. I began to suspect the problem lied more in the process of eating and the toxic bile release that followed. I also noticed that when my general inflammation level was high, I was sensitive to everything, not just food. When the inflammation subsided, I had no problems eating anything.

My LLND gave me this supplement to calm food reactions. I take 3 or 4 caps of high potency Body Bio brand 600mg Cal/mag butyrate with or just after a meal when I feel the headache coming on. It usually stops the headache within 20 minutes. When I feel good, I try to remember to take a maintenance dose of 3 caps per day. When inflammation is high, I take 8 – 9 caps per day.

So what is butyrate? It’s a fatty acid that helps to combat ammonia, support the health of the digestive tract, and reduce cytokines (inflammation generating signaling compounds), among other uses.  Butyrate is proving to be a remarkable nutrient for a number of conditions.

Here is an excerpt from an article written by Mark Speight, MD.

…Butyrate is an amazing molecule. From cancer and neurodegenerative diseases, to irritable bowel, it is proving to be a powerhouse.

Butyrate is a four carbon chain fatty acid that the intestinal tract uses as food. It is generated from the colon bacteria in conjunction with fiber products. If you don’t have enough healthy bacteria and fiber in your intestinal tract, then the chances are good that you won’t make enough butyrate.

Butyrate has also been shown to slow the beginning of cancer, in fact inducing what we call differentiation (making cells that were previously behaving like cancer cells – rapidly dividing, become normal again). In one study some 20 years ago animals with chemically induced tumors in the colon had reduction in the size and number of their tumors when they were treated with butyric acid enemas twice daily for eight weeks.

More recent research suggests that Butyrate quells the storm of cytokines that causes inflammation in the brain leading to scarring and cell death. By doing so, it is thought that chronic degenerative diseases like Alzheimers, ALS, and others may be slowed or even reversed. In fact, preliminary evidence suggests this is so when this nutrient is given in conjunction with others.

There are different kinds of butyrate. Some butyrates are attached to sodium, others to calcium and magnesium. Most people need calcium and magnesium so calmag butyrate is a reasonably safe option.

Butyrate also helps clean the liver, the gall bladder, and biliary tree in the liver. It also helps clean the bowel, helps control ammonia, and removes unwanted “renegade fats”…

To read the complete article, including references, visit http://www.cfwellness.com/articles/butyrate

–        Laura

Is Lyme Disease the New HIV?

An interesting article and a frightening prospect. Paragraphs seven and eight give information on effective treatment. As I have realized from my own experience, overcoming this disease is more than just killing off the infection. One must support the body’s detoxification and correct the deficiencies that have developed. I go a step further and advocate mind/body “reprogramming” to change the neurological pathways that have adapted to the illness.

Is Lyme Disease the New HIV?

by Katina I. Makris, CCH • Peterborough, NH

http://www.creationsmagazine.com/articles/current_issue/Makris.html

The USA is currently in the throes of a swiftly moving Lyme disease epidemic. Hundreds of cases are contracted daily, and the tick population, the primary insect carrier, is multiplying in proportions beyond historically normal. Anxiety over potential infection is rising, nationwide.

Climate changes over the past decade have yielded milder temperatures in the USA’s higher latitudes, enabling ticks to now “winter over” in northern New England, Minnesota, Wisconsin, Canada and mountainous elevations of the Alleghenies, Sierras, Cascades and Rocky Mountains. Additionally, migratory bird patterns have introduced Lyme disease to southern regions such as Florida, Texas, even as far distant as Uruguay and Scandinavia. Lyme disease is found in eighty-nine countries of the world

Lyme disease, transmitted by a bite from a tick, is a bacterial infection caused by an organism know as borrelia burgdorferi, or one of the variant tick-borne co-infections caused by parasites, bacteria and micoplasmas. Borrelia, the primary, is a spirochete or corkscrew bacteria, which is in the same family as syphilis, yet is considered to be stronger and more virulent. Like syphilis, Lyme initially starts out with seemingly mild symptomatology, but if untreated, can cause devastating effects to the central nervous system, heart, kidneys, skeletal and immune system with sometimes permanent repercussions.

The CDC by their own admission, estimates 300,000 cases of Lyme are contracted in the USA annually and a mere 10% are properly diagnosed, leaving over 250,000 annually with misdiagnoses, such as fibromyalgia, Lupus, chronic fatigue syndrome, MS, migraines, learning disabilities, bi-polar disorders, Parkinson’s, heart arrhythmia’s and more, when the Lyme organisms are the true culprits. Reasoning suggests well over 2,000,000 people in the USA are afflicted with the chronic form of Lyme. Immediate attention, funding, research and education needs to be stepped up to address the misunderstandings and ravages of this exploding epidemic, which has surpassed HIV in its growth rate, as the number one infectious illness in the USA

The USA eastern seaboard, Ohio River Valley, Northern California and the Pacific Northwest are under fierce assault. Individuals and pets come into proximity with this insect. Long Island has long been in the crosshairs of the epidemic, and most folks are savvy about the risks. However, we can never be slack about caution with this illness.

The standard lab test most local and regional facilities run for Lyme disease has over a 60% error rate. They are very inaccurate, giving many false negatives, leaving people sick when they need treatment. A LLMD (Lyme literate) physician will use one of the three USA Lyme specialty labs, with more attuned testing. These newer labs, Igenex, SUNY Stonybrook and Clongen are helping to turn thousands of lives around.

The chronic form of Lyme disease may require prolonged treatment protocols. Some may effectively respond to a rotational regime of antibiotics, antimalarials, and anti-parasitic pharmaceuticals, administered by a Lyme literate physician. The best recovery outcomes for chronic Lyme, however, seems to be obtained by an Integrative Medicine approach. Rebuilding the massive depletions to various systems of the body, is just as critical as killing off the entrenched microbial infections.

A certified clinical nutritionist, licensed naturopath, licensed acupuncturist, or certified classical Homeopath versed in Lyme, may be excellent resources to assist in recovery. It appears this is the epidemic of our era, asking us to marry the two hands of healthcare –the diagnostics and pharmaceutical weaponry of conventional medicine, with the supportive therapeutics of complementary alternative medicine. Two hands working together are better than one. Without addressing the serious depletions to the immune, nervous, and endocrine systems, recovery from chronic Lyme appears to be partial, at best, in many longer-term cases.

Please pay attention and take care of yourself and loved ones. This illness should not be glossed over. Nationwide Lyme disease support groups and associations can be of assistance. With the mild weather upon us now, daily tick checks and preventative measures of limb covers with long pants and shirtsleeves in the woods and tall grasses, tick repellent on our pets and us, and heads up to possible early infection symptoms are essential.

About the author: Katina I. Makris, CCH, CIH is the author of the award finalist book, Out of the Woods, Healing Lyme Disease, Body, Mind & Spirit. She has worked in health care for 26 years, as a Classical Homeopath and Intuitive Healer. She is a former popular newspaper columnist and a past board member of The Council for Homeopathic Certification. Katina is a graduate of Duke University and The Stillpoint School of Integrative Life Healing. She lectures extensively about Lyme disease. katina.makris@comcast.net.