Tag Archives: Herxheimer reaction

#Lyme Disease and Rife Machines Part 2

Hello to All,

I haven’t felt like writing in a while. I’ve been in a holding pattern waiting to see how I felt after several months of killing Borrelia with a Rife machine. This technology is pretty new to me and I’m trying to understand it better. I’m also trying to decide how much faith to put in a treatment that is so alternative.

When I last wrote, my doctor had put me on Teasel root. This herbal antimicrobial made me miserable even though I reduced my dose to 1/10 of a drop once per week. I had profound fatigue, headaches, muscle weakness, shakiness, and light-headedness even at this low dose. My doctor agreed with me that these were side effects and not worth it for me. We discussed alternate medications, especially ones that would be compatible with rifing. He suggested tinidazole.

According to people knowledgeable about Rife machines, using antibiotics is counterproductive to rifing. Antibiotics can cause resistance and drive the pathogens deeper into the tissues as they avoid exposure to the drugs. Certain ABX can be used intermittently while rifing, such as cyst busters like metronidazole or tinidazole. I just read Bryan Rosner’s book Lyme Disease and Rife Machines and he says this as well.

I’m doing a treatment protocol that increases the time and number of frequencies as you can tolerate it.  I’m following auto channels recommended to me. Auto channels cycle through groups of frequencies. I started with channel 466, then I added 467. I just added channel 468 on top of those two. That will cover about 100 frequencies against Lyme spirochetes, hatchlings, eggs, and Babesia. The nice thing about the GB-4000 is that it can run 8 frequencies at once, so you can cover a lot of ground.

As for my response, I had 30-hour flu-like herx responses to the treatments for a number of sessions. The herxes decreased so I added time and more frequencies until I herxed again. I just started the tinidazole, so we’ll see what that does to me…

Best,

Laura

Lyme Disease and Frequency (Rife Machine) Therapy

This year I underwent 5 months of antibiotic treatment for Borrelia and Babesia. I think it did me some good as the dizziness and vertigo subsided. Unfortunately, I wound up with digestive problems, increased fatigue, and depression after the ABX. My doctor rotated me onto herbs. Both Samento and Banderol (cat’s claw and otoba) gave me wicked headaches. I’m now on teasel root and it really wipes me out, even at a low dose of 1 drop every three days.

I also finally decided to try frequency therapy (aka a Rife machine) to help kill off the spirochetes. Members of my local Lyme Disease community who recovered said that this was an important part of their treatment. They also said that it caused a definite herx reaction. I wanted to know what a true herx felt like, as opposed to a medication side effect.

For those of you unfamiliar with so-called Rife machines, here is the lowdown. Dr. Royal Raymond Rife was an American scientist who built the first high powered microscope in the 1930’s. He also discovered that all organisms have their own electromagnetic “signature” – a specific pattern of oscillation. He then discovered that viruses, bacteria, parasites, and even cancer cells could be destroyed by intensifying those frequencies until the organisms explode, just as an intense musical note can shatter a wine glass. Dr. Rife then invented a frequency machine to vibrate and destroy the organisms. His original technology was lost (not an accident according to those who believe it was an act of pharmaceutical company sabotage) but modern replicas exist.

Proponents of frequency therapy say there are benefits. No antibiotic resistance. Penetration into deep areas of the body that ABX miss, such as the brain. No side effects. No toxicity. No damage to beneficial flora. No yeast overgrowth. But this therapy is considered experimental and alternative. It is not FDA approved. Your doctor will not tell you about it for fear of risking their medical license. When I asked my doctor about it he said it was a good thing to do – unofficially, of course.

I started using this therapy weekly in September. I’m using a GB 4000 frequency generator with a MOPA (Master Oscillator Power Amplifier) and a plasma tube. I get what seems to be a true herx response: aches, profound fatigue, mild fever. I don’t get my typical toxicity headache. This lasts for about 30 hours and then subsides.

After my initial experiment killing Borrelia spirochetes with frequency, I’m now following an established 7-day frequency protocol to kill Candida. My first treatment left me feeling exhausted and achy, so I’m assuming it’s doing something. I’ll keep at it and see what happens.

Until next time…

Laura

#Lyme Disease Treatment: Herx or Medication Intolerance?

Hi All,

I’m very pleased today. I talked with my doctor and he thinks that the discomfort caused by the grapefruit seed extract wasn’t a herxheimer reaction, it was intolerance. I didn’t know that you could tell the difference, but he says there are clues. In general the guidelines are:

  • A herx reaction is generally marked by multiple symptoms such as malaise, muscle pain, fatigue, headache, and a flu-like feeling that lasts for weeks.
  • Medication intolerance is generally marked by isolated symptoms that resolve quickly upon discontinuing the medication.

I had intense headaches on GSE, even at very small doses. That shouldn’t happen. Also, the HA’s stopped immediately when I stopped the GSE. So I was intolerant! He suggested alternate cyst busting drugs:

  1. Metronidazole (I used this years ago and it caused awful nausea)
  2. Tinidazole (extremely expensive: $700/month)
  3. Rifampin (can cause liver problems. I know someone this happened to)
  4. Fluconazole, aka Diflucan. (This is my best option. I already take it for yeast problems, and it agrees with me. It isn’t as strong as the others, but I can take it for a prolonged period).

The nice news is that I feel good on my current regimen without the GSE. My headaches and neck pain are pretty much gone. I haven’t noticed bad night sweats. My energy level is improving. So this sounds like my magic combination for a while. I have a few other problems to solve, such as insomnia, chemical sensitivities, allergies, and periodic vulvodynia. But I’m relieved and I feel very hopeful that I’m on the right path.

The plan is to treat the Babesia for a minimum of 4 months, and stay on the ABX for Lyme for a while. Then I’ll switch over to herbals, probably for the long haul. I understand that long term maintenance is probably required for me. I accept the fact that I probably won’t be cured, but can achieve long term remission and live a “normal” life. I will be thrilled if this happens.

Best,

Laura

#Lyme Disease/Babesia Treatment: Antibiotics and GSE

Hello to All,

Three weeks ago, I started ABX treatment with Biaxin and Malarone, and I was doing pretty well. My energy is still low and I’m still having wicked bad insomnia (probably related), but my headaches and neck pain subsided! I’ll take any victory that I can get.

Then I added grapefruit seed extract (GSE) into the mix per my doctor’s instructions, 250 mg 2x/day.

Wham! The herx hit me. Daily migraines, lightheadedness, dizziness, worsening fatigue, trouble finding my breath at the slightest exertion. So I did my usual routine of detox and aklalinization:

  1. Lessen the dose of the offending medicine until tolerable
  2. Vitamin C
  3. Alka Seltzer Gold
  4. Lemon water
  5. Coffee enemas
  6. Epsom salt baths

GSE is known to break up biofilms and cysts where the infections hide. I’d say that it’s effective!

So my body has calmed down considerably. I reduced my dose of GSE to ½ of a 125mg pill per day. I will work up slowly as tolerated. My goals now are to:

1) Find the dose of GSE that challenges me without totally disabling me, and,

2) Keep trying sleep medications until I find one that is effective. (Unfortunately, the Trazodone I was using ceased to be effective after a few months).

So I trudge forward…

Best,

Laura

Lyme Disease Treatment Frustration

Hello to All,

I usually like to write about new and innovative things pertaining to Lyme Disease and related illnesses. But this post is about frustration. I’ve gone through three years of treatment (including initial detox work), and I’m wondering if I’m making enough progress.

In 2012, I had a lovely remission for several months after detox and my first two herbal anti-microbials. I thought for sure I was on the right track. Then treatment with Byron White A-BART formula set me back considerably. Then I had an awful time during the winter while taking ketoconazole for yeast along with an enzyme from another doctor. That combination made me sicker than I’ve ever been in my life. I switched doctors and was stabilized for a while in the summer. But I’m once again struggling while taking an antimicrobial herbal concoction called Quintessence. I can’t seem to take it for more than a week at a time without feeling really bad. Maybe it’s more of an allergy than a herx? It’s hard to tell the difference.

My life is a constant roller coaster of fluctuating symptoms resulting in mild to serious disability. Unfortunately, most things that are supposed to make me feel better end up making me feel much worse.  I really need to hit a solid turn around point so that I can resume working and have a life again.

I boil it down to three problems:

  1. Poor detox ability
  2. Poor inflammation control
  3. Recurring yeast flare ups whenever I take an antimicrobial (even the herbal kind)

I started looking back to 2012 to see what I was doing that may have contributed to my good health for several months. I did:

  • IV chelation
  • a series of colonics
  • healing treatments and foods for the gut
  • Pekana Detoxification remedies for the liver, kidneys, and lymphatic system (Apo-hepat, Renelix, and Itires)
  • pharmaceutical and natural antifungals

This was all BEFORE starting Lyme meds. Then I started doing BioSET treatments. Perhaps I was properly detoxed and my organs of elimination were functioning well, and that enabled me to tolerate the Byron White A-BAB and A-L formulas. I will re-visit these strategies to see if they help.

I’m also considering pharmaceutical antibiotics treatment. Many Lyme docs say that they are necessary for recovery. I’m not saying they are the only important thing, just that most patients need them to recover in conjunction with other remedies. I’ve also been talking to other Lyme sufferers who felt that the ABX were an important piece for them.

I have an appointment next week to see Dr. R., an LLMD in Seattle who is supposed to be very skillful with ABX. I want a confirmation of my diagnosis and fresh eyes on my problems. He also has an impressive and comprehensive website with a free treatment manual that aims to help not only his patients, but patients who self-treat due to cost or lack of insurance. I hope he has some strategies for detox and combating inflammation so that I can make some real progress in 2014.

I’ll let you know how it goes. Wish me luck!

Laura

Lyme Disease Treatment and Fatigue

Hello All,

As I mentioned in a previous post, I started taking a new herbal antimicrobial  tincture called Quintessence from Bio Pure (Dr. Klinghardt’s company). This tincture contains five herbs popularized by the herbalist Stephen Buhner:

1)      Andrographis (modulates autoimmunity, protects heart tissue, and is anti-inflammatory for the central nervous system)

2)      Japanese Knotweed (antibacterial, anti-inflammatory, immune modulating, antioxidant)

3)      Ceanothus (for coagulation problems, sluggishness in the spleen, liver, and lymphatics. Also antimicrobial for certain coinfections like Bartonella.)

4)      Smilax

5)      Stephania (powerful for eye and ear involvement, balance problems, Bell’s palsy,  anti-inflammatory,

I started at 1 drop per day and am slowly working my way up to 30 drops 3x per day as directed. I’m happy to say that it didn’t disagree with me for the first few weeks. Then as I approached 20 drops 3x per day, Wham! The fatigue and malaise hit me like a city bus. I assume that I’ve hit a therapeutic dose and am experiencing die-off, aka, a Herxheimer reaction.

When you tell healthy people that you have fatigue, they say, “Oh yes, I get tired sometimes, too.”

Ahem. I politely try to explain to them the fatigue associated with Lyme Disease and die-off.  I say, “Remember when you had the flu? Remember how you couldn’t get off the couch for more than a few minutes and then you had to lie down again? And you felt like crap? Yah, it’s like that… but for days and weeks on end.”

Usually, my fatigue is mild. I have about 4 productive hours a day, then I have to rest in the afternoon,  take a short nap, and then I have some functionality in the evening again. But this time the fatigue is crushing. I may have a few mildly productive hours in the morning, and then I’m through. I HAVE to lie down. Ugh. I know some of you out there have it way worse than me, and my heart goes out to you.

I know that low thyroid and poor adrenal function also contribute to the fatigue. Unfortunately, when I take T3/T4 thyroid meds or certain herbs for adrenals, they are far too stimulating for me and exacerbate the heart palpitations. I’ll write more on this subject next time.

So what to do now?

  • Back off the Quintessence
  • Step up the detox with binders and vitamin C, use a sauna, etc…
  • Start taking Eleuthero (Siberian Ginseng) for adrenals and fatigue (given to me by my doctor)
  • Take Co Q 10 and L-Carnitine for cellular energy production and cardiovascular support.
  • Have a Bioset treatment. This can really calm a bad Herx reaction for me.

And when I feel bad enough I take Tramadol as needed. Tramadol is one of my rescue medications. Not only is it great for acute headaches and body pain, but it works wonders for feelings of general malaise and misery.

Best,

Laura

#Lyme Disease Treatment Update for May: Feeling Well

Hello All,

After a miserable few months this past winter, I’m feeling good again. I believe that some of the medications I took made me ill, mainly the Byron White ABART and ketoconazole. So, how do we know the difference between medication intolerance and a true herx response? I think often, we don’t.

If you feel unbearably bad on a medication, tell your doctor. Extreme herxing and detox reactions cause runaway inflammation and can be both painful and damaging to the body. Always be sure your detox pathways are supported.

So I decided to see a new doctor and get another opinion on my course of treatment. Just having a fresh set of eyes on a problem can make a big difference. The first thing she did was have me create a timeline of my treatments and symptoms. This was incredibly valuable because it helped me see what I was doing last year that helped me feel better.

I realized that I was taking a high dose methylfolate supplement (Deplin, 15mg daily), and a high dose of butyrate (8 caps of 600mg daily) last summer. I went back on both of those.

She started me on a Chinese herbal combination: minor bupleurum formula, for liver stagnation, and also Ceanothus (red root) for babesia and bartonella and lymph drainage. She also put me on Pau d’arco for candida, which unfortunately gave me indigestion.

After about a month my pain and dizziness subsided. I feel much better! Almost normal, in fact.

I just received my Gene SNP test results back. It’s no surprise that I have the MTHFR mutation, and detox pathway 1 and 2 impairment. I see my doc tomorrow and will discuss my results with her and learn what they really mean.

Meanwhile, I’m still dealing with at least 8 days of bad headaches per month, MCS, insomnia, depression, and fatigue. My doctor suggested that I’m at a good point to try biofeedback for these problems. I met with a practitioner who does neurofeedback and I’m going to try it as soon as I have the money.

More on SNP’s and neurofeedback next time.

Best wishes to all,

Laura

#Lyme Disease and Biotoxin Removal Protocols

So after a tough month of detox symptoms following a new anti-microbial regimen, I decided to research an improved detox protocol for myself. I am cleaning up my diet (again) and taking time off from killing the infections until I can reduce my existing toxic load and improve my body’s detox system.

My understanding of this illness has deepened considerably in recent months. Chronic Lyme Disease is not a stand-alone condition. It is a complex interaction of impaired physiology, biotoxin load, and immune dysregulation. The infection is only a part of the problem. Borrelia and other pathogenic microbes are opportunistic and stubborn infections that will wreak havoc in the already impaired body.

My research has led me to the work of two researchers who advocate removal of mold toxins from the body and the immediate environment as the path to regaining one’s health: Ritchie Shoemaker, MD, a family practice physician, author, and researcher, and Richard Loyd, PhD, a researcher and nutritionist. According to these pioneers in the field of biotoxin related illness, treating mold and removing existing toxins from the body is vital for a full recovery from Lyme disease.

Both of their protocols use an intestinal toxin binder, such as cholestyramine or Cholestepure. They both work by binding toxins in the intestines that have been released from the gallbladder. Toxins are stored in fat cells. They are processed through the liver then on to the gallbladder until a fatty meal causes the gallbladder to release bile and the toxins into the gut. Without cholestyramine or other toxin-binding agents, they can re-circulate back into the blood stream. This is a self-perpetuating cycle. Even if you kill off pathogenic microbes in the body, their toxins continue to circulate in people with ineffective detox pathways. The gist of treatment is threefold: Avoid, Prepare, and Remove.

Note: Cholestyramine is a prescription bile acid sequestrate intended for use in lowering cholesterol. It has also has been found clinically to be effective in relieving the symptoms of toxic mold syndrome. It works by binding to the mold toxins in the gut and removing them from the body. Cholestyramine has been used for decades in mainstream medicine to lower cholesterol. It is also used by the U.S. military to remove neurotoxins after exposure in combat. It has an excellent safety profile because it is not absorbed into the blood stream. The most common side effects are constipation, heartburn, and nausea. Dr. Loyd suggests a product called Cholestepure as a natural, gentler alternative.

CAUTION: Lyme patients, or people with any severe biotoxin illness  may not be able to tolerate any cholestyramine at all. Starting a toxin binding protocol such as this can lead to intense detox (Herx) reactions. Talk to your doctor. And prep with a good anti-inflammatory protocol BEFORE commencing a protocol like this.

Step One: Avoid further exposure to mold toxins

Remove yourself from toxic environments, or remove the mold from your environment. See Dr. Loyd’s website and paper on mold http://www.royalrife.com/mold_toxins.pdf for mold removal strategies, including diffusing mold killing essential oils with a diffuser into your car, garage, and basement. Read Dr. Shoemaker’s books: Mold Warriors and Surviving Mold for detailed information.

Step Two: Prepare your system for the detox storm to follow

Cholestyramine can cause unbearable detox symptoms (inflammation!) in chronically ill patients. Once you start processing out the toxins, more are released from their safe hiding places. Though a number of physicians (including Dr. Klinghardt) once prescribed a short course of a drug called Actos to mitigate detox symptoms, this drug is now linked with increased risk of bladder cancer. This drug can also be problematic for those with insulin problems and low leptin levels.

See http://www.survivingmold.com/docs/biotoxinpathwayritchieshoemakermd.pdf for helpful diagrams of the body’s chemistry to better understand the inflammatory cycle and detox pathways.

Dr. Shoemaker now advocates preparing the body with very high doses of fish oil as a natural anti-inflammatory. The targeted dose of fatty acids is 2.4g EPA and 1.8g DHA daily for 8 days prior to commencing binding therapy. This can be 5 or more capsules of high potency fish oil!

Dr. Loyd suggests one of the following products: UltraInflamX, Kaprex, KaprexAI, BioticsKappArrest. They inhibit NF-kappaB, a messenger that causes the release of inflammatory cytokines. They are safe, natural alternatives to Actos.

In addition to fish oil, my doctor has me on a concentrated, highly bio-available form of turmeric called Meriva.

To my surprise, Dr. Loyd (and also noted LLMD, Dr. Steven Harris) also suggests foot detox to draw out toxins. He suggests electronic foot detox baths and foot detox patches. See http://www.royalrife.com/mold_toxins.pdf. Honestly, I thought foot detox was pure B.S. until I read his website. Scott Forsgren from www.betterhealthguy.com has also used the Japanese-made patches with success. Go to his website for brand suggestions, since there are likely many ineffective ones out there. This is supposedly a gentle toxin removal treatment without side effects. It may be helpful to undertake this before commencing with toxin binding.

Part Three: Bind the Toxins

Mix one packet of cholestyramine in water four times daily between meals, preferably 30 minutes before a meal.

  • As an alternate, Welchol is a gentler pharmaceutical binding agent that can be used.
  • As a natural alternate use 1 – 3 capsules of Cholestepure, three times per day in between meals.

Shoemaker requires a low sugar, low amylase (starch) diet to aid in the process and reduce detox reactions. Duration of treatment is anywhere from two weeks to several months, depending on the toxic load.

In Conclusion

Please be careful when taking any new medications/supplements or implementing a detox protocol. It’s tempting for desperate, chronically ill people to play doctor on themselves. But detoxing can have serious side effects, including runaway inflammation, which is not only painful, but is dangerous. Get professional help. Do your research. And go slowly and carefully.

– Laura

Lyme Flares and Detoxing Part Two: How to Stop a Herxheimer Reaction

Hello Again Dear Readers,

I’ve learned a few things since my last post about detoxing. I think I’ve stopped my detox reaction (aka Herx) in its tracks.

I learned over a year ago that my chronic headaches, muscle and joint pain, fatigue, insomnia, dizziness, digestive problems, and general misery are my body’s reaction to toxicity. When I got the Lyme diagnosis 10 months ago, I finally understood why. But figuring out what to do about it eluded me. Until now.

For this last flare up, my BioSET practitioner did muscle testing and said that mold played a role, as did Bartonella. She did a treatment on me and I felt somewhat better. I was still having headaches after every meal, however.

I researched solutions to Herxes on message boards and from known Lyme doctors. Then I talked to my doctor about my plan to be sure it wouldn’t cause a problem. Here is what I did:

Take a break from anti-microbials

I temporarily stopped all anti-microbial medications, pharmaceutical or natural. This gave my body time to process out the dead microbes and their toxic by-products.

Glutathione

Two days in a row I took Liposomal Glutathione in the following method, as suggested by noted LLMD, Dr. Joseph Burrascano.

  • Alka-Seltzer Gold in water with lemon.
  • Liposomal Glutathione, 1500 MG (may put in juice to make more palatable)

Liquid Diet

One of my worst problems is that I often get intense headaches after eating. I now realize it isn’t WHAT I eat, but the FACT that I eat. Ingesting solid food of any kind overwhelms my body that is already overburdened by chronic infection. So here is my solution.

I consume only liquid meals when I need to seriously detox. They don’t overwhelm the organs of elimination that are already struggling with processing toxins. I add in solid food one meal per day and then more as tolerated. I have vegan protein shakes with fruit for breakfast and vegetable smoothies with garlic and onion for lunch and dinner. I sneak a few rice crackers and olives if I need something salty. This may sound harsh, but it helps me feel better.

Chlorella

I ingest 1 – 2 g of chlorella, 30 minutes before eating. Chorella is a detoxer. Ingesting it 30 minutes before food puts it in your small intestine at exactly the right place for your body’s bile release when you begin eating. In addition to helping digest food, bile contains toxins filtered out by the liver. You want a substance to absorb these before they cause a reaction and are reabsorbed by the intestines.

Buffered Vitamin C (very helpful!!!)

If I feel a reaction after eating, I take 1 tsp (5 grams) buffered Vitamin C powder in water. (I use Nutribiotic Calcium Ascorbate). This is my lifesaver! It stops a reaction in its tracks for me. I repeat this after every meal if I’m feeling sensitive. I can tolerate 15g or more per day in divided doses without adverse reactions.

 Quercetin

I take 500mg quercetin, 3x per day. This is supposed to support healthy histamine levels.

Other helpful things:

  • Warm Epsom salt baths
  • Coffee retention enemas (help purge the liver)
  • Pekana homeopathic detox remedies to support liver, kidneys, and lymphatic system
  • Plenty of fiber and water

Voila! The detox reaction is now mostly gone. I am gradually adding more solid food into my diet. No problems. No headaches, no indigestion. All my symptoms are abating.

I hope this helps someone else out there. Please let me know if it does.

–        Laura