Tag Archives: Lyme Disease Treatment

#Lyme Disease Treatment with Andrographis Update

Hello To All,

I started taking the herb andrographis last month to help kill off the remaining borrelia. Both my naturopath and my LLMD thought this would be a good choice for me. So I started off with 1 pill per day with the intention of working up slowly.

Whoa…

My reaction to it was quite strong at first. I’m happy to say that I didn’t get a migraine, which is my usual signal that I don’t tolerate a substance. What I did get were classic die-off symptoms: fatigue, achiness, chills, irritability, and anxiety just for added fun. I slowly worked my way up to 2 pills per day 3 days per week. The recommended dose is 4 pills per day. It got easier, but it was still tough. But I felt optimistic because I knew that I was making progress.

Then I had a setback. I went a little wild with food while out of town and my yeast symptoms returned. I started on the Ampho B/Diflucan/Nystatin combination that has served me well in the past, but this time I crashed hard. It was probably the combination of the andrographis and the drugs. I had to stop the andrographis temporarily. It took about two weeks for my symptoms to subside. I feel much better this past week. It’s frustrating, though. Ever since the antibiotics, the yeast just keeps coming back. I’m looking into more long-term solutions for this, such as: systemic enzymes, iodine, monolaurin, and different probiotics.

On a positive note, some remarkable things happened in the last few months. I had some days where I felt great! Not just okay, not just good, but great! My sensitivity to food markedly decreased. I also woke up one day thinking that I’m finally healing and that I will make a full recovery. Is this false hope? I don’t know. But I’ve learned to pay closer attention to my body and listen to my intuition. It steers me in the right direction when I’m willing to listen to it.

Best,

Laura

Progress Report September, 2015

Hello To All,

I haven’t posted to my blog in months. I went through hell on antibiotics in the spring, and I felt like taking a break from it all this summer. On a positive note, I felt quite good from late June through August. Here is an update.

As I mentioned in the spring, I’ve been using a frequency generator (aka a Rife machine) for 12 months now to kill off the borrelia. My doctor is very supportive of this, but says that I need something to kill the dormant or cyst form of the infection. I tried grapefruit seed extract and that gave me horrendous headaches. Ditto for Samento and Banderol. I then tried Tinidazole. I lasted on that for three months and crashed hard with gut and yeast problems. I stopped the ABX, kept rifing and doing some serious detox over the summer and lo and behold, I felt pretty decent! In particular, I went back on three Pekana detox remedies (Apo-hepat, Itires, and Renelix). I’ve come to realize that these remedies are super helpful for me.

I started on the herb Cumanda this past month. I stopped it because it, too gave me horrendous headaches. My naturopath suggested that I try andrographis. According to Stephen Buhner, this herb also kills the cyst form of borrelia.

So, where am I after almost 4 years of treatment? I’m not yet recovered, but I have made progress. I’m just getting frustrated and impatient at how long this is taking. I want to go back to work. I want to have fun. I want my life back!

I was feeling a bit despondent this month. I went to see author Katina Makris talk about her recovery from Lyme. (She is the one who wrote Out of the Woods. She has a new book out and she is touring). I felt a renewed sense of hope after hearing her talk. Her recovery took a long time, too. But she’s doing great now!

I try to remain hopeful. I also try to remember that there are many pathways to healing from Lyme, and many people who do indeed recover. So I keep slogging away at it.

Best,

Laura

#Lyme Disease and Rife Machines Part 2

Hello to All,

I haven’t felt like writing in a while. I’ve been in a holding pattern waiting to see how I felt after several months of killing Borrelia with a Rife machine. This technology is pretty new to me and I’m trying to understand it better. I’m also trying to decide how much faith to put in a treatment that is so alternative.

When I last wrote, my doctor had put me on Teasel root. This herbal antimicrobial made me miserable even though I reduced my dose to 1/10 of a drop once per week. I had profound fatigue, headaches, muscle weakness, shakiness, and light-headedness even at this low dose. My doctor agreed with me that these were side effects and not worth it for me. We discussed alternate medications, especially ones that would be compatible with rifing. He suggested tinidazole.

According to people knowledgeable about Rife machines, using antibiotics is counterproductive to rifing. Antibiotics can cause resistance and drive the pathogens deeper into the tissues as they avoid exposure to the drugs. Certain ABX can be used intermittently while rifing, such as cyst busters like metronidazole or tinidazole. I just read Bryan Rosner’s book Lyme Disease and Rife Machines and he says this as well.

I’m doing a treatment protocol that increases the time and number of frequencies as you can tolerate it.  I’m following auto channels recommended to me. Auto channels cycle through groups of frequencies. I started with channel 466, then I added 467. I just added channel 468 on top of those two. That will cover about 100 frequencies against Lyme spirochetes, hatchlings, eggs, and Babesia. The nice thing about the GB-4000 is that it can run 8 frequencies at once, so you can cover a lot of ground.

As for my response, I had 30-hour flu-like herx responses to the treatments for a number of sessions. The herxes decreased so I added time and more frequencies until I herxed again. I just started the tinidazole, so we’ll see what that does to me…

Best,

Laura

Lyme Disease and Frequency (Rife Machine) Therapy

This year I underwent 5 months of antibiotic treatment for Borrelia and Babesia. I think it did me some good as the dizziness and vertigo subsided. Unfortunately, I wound up with digestive problems, increased fatigue, and depression after the ABX. My doctor rotated me onto herbs. Both Samento and Banderol (cat’s claw and otoba) gave me wicked headaches. I’m now on teasel root and it really wipes me out, even at a low dose of 1 drop every three days.

I also finally decided to try frequency therapy (aka a Rife machine) to help kill off the spirochetes. Members of my local Lyme Disease community who recovered said that this was an important part of their treatment. They also said that it caused a definite herx reaction. I wanted to know what a true herx felt like, as opposed to a medication side effect.

For those of you unfamiliar with so-called Rife machines, here is the lowdown. Dr. Royal Raymond Rife was an American scientist who built the first high powered microscope in the 1930’s. He also discovered that all organisms have their own electromagnetic “signature” – a specific pattern of oscillation. He then discovered that viruses, bacteria, parasites, and even cancer cells could be destroyed by intensifying those frequencies until the organisms explode, just as an intense musical note can shatter a wine glass. Dr. Rife then invented a frequency machine to vibrate and destroy the organisms. His original technology was lost (not an accident according to those who believe it was an act of pharmaceutical company sabotage) but modern replicas exist.

Proponents of frequency therapy say there are benefits. No antibiotic resistance. Penetration into deep areas of the body that ABX miss, such as the brain. No side effects. No toxicity. No damage to beneficial flora. No yeast overgrowth. But this therapy is considered experimental and alternative. It is not FDA approved. Your doctor will not tell you about it for fear of risking their medical license. When I asked my doctor about it he said it was a good thing to do – unofficially, of course.

I started using this therapy weekly in September. I’m using a GB 4000 frequency generator with a MOPA (Master Oscillator Power Amplifier) and a plasma tube. I get what seems to be a true herx response: aches, profound fatigue, mild fever. I don’t get my typical toxicity headache. This lasts for about 30 hours and then subsides.

After my initial experiment killing Borrelia spirochetes with frequency, I’m now following an established 7-day frequency protocol to kill Candida. My first treatment left me feeling exhausted and achy, so I’m assuming it’s doing something. I’ll keep at it and see what happens.

Until next time…

Laura

#Lyme Disease Treatment: Herx or Medication Intolerance?

Hi All,

I’m very pleased today. I talked with my doctor and he thinks that the discomfort caused by the grapefruit seed extract wasn’t a herxheimer reaction, it was intolerance. I didn’t know that you could tell the difference, but he says there are clues. In general the guidelines are:

  • A herx reaction is generally marked by multiple symptoms such as malaise, muscle pain, fatigue, headache, and a flu-like feeling that lasts for weeks.
  • Medication intolerance is generally marked by isolated symptoms that resolve quickly upon discontinuing the medication.

I had intense headaches on GSE, even at very small doses. That shouldn’t happen. Also, the HA’s stopped immediately when I stopped the GSE. So I was intolerant! He suggested alternate cyst busting drugs:

  1. Metronidazole (I used this years ago and it caused awful nausea)
  2. Tinidazole (extremely expensive: $700/month)
  3. Rifampin (can cause liver problems. I know someone this happened to)
  4. Fluconazole, aka Diflucan. (This is my best option. I already take it for yeast problems, and it agrees with me. It isn’t as strong as the others, but I can take it for a prolonged period).

The nice news is that I feel good on my current regimen without the GSE. My headaches and neck pain are pretty much gone. I haven’t noticed bad night sweats. My energy level is improving. So this sounds like my magic combination for a while. I have a few other problems to solve, such as insomnia, chemical sensitivities, allergies, and periodic vulvodynia. But I’m relieved and I feel very hopeful that I’m on the right path.

The plan is to treat the Babesia for a minimum of 4 months, and stay on the ABX for Lyme for a while. Then I’ll switch over to herbals, probably for the long haul. I understand that long term maintenance is probably required for me. I accept the fact that I probably won’t be cured, but can achieve long term remission and live a “normal” life. I will be thrilled if this happens.

Best,

Laura

#Lyme Disease/Babesia Treatment: Antibiotics and GSE

Hello to All,

Three weeks ago, I started ABX treatment with Biaxin and Malarone, and I was doing pretty well. My energy is still low and I’m still having wicked bad insomnia (probably related), but my headaches and neck pain subsided! I’ll take any victory that I can get.

Then I added grapefruit seed extract (GSE) into the mix per my doctor’s instructions, 250 mg 2x/day.

Wham! The herx hit me. Daily migraines, lightheadedness, dizziness, worsening fatigue, trouble finding my breath at the slightest exertion. So I did my usual routine of detox and aklalinization:

  1. Lessen the dose of the offending medicine until tolerable
  2. Vitamin C
  3. Alka Seltzer Gold
  4. Lemon water
  5. Coffee enemas
  6. Epsom salt baths

GSE is known to break up biofilms and cysts where the infections hide. I’d say that it’s effective!

So my body has calmed down considerably. I reduced my dose of GSE to ½ of a 125mg pill per day. I will work up slowly as tolerated. My goals now are to:

1) Find the dose of GSE that challenges me without totally disabling me, and,

2) Keep trying sleep medications until I find one that is effective. (Unfortunately, the Trazodone I was using ceased to be effective after a few months).

So I trudge forward…

Best,

Laura

#Lyme Disease Treatment Update

Hello to All,

I saw my LLMD this week and I’m starting treatment with pharmaceutical antibiotics. I’m apprehensive but also hopeful that this regimen could turn things around for me. He had me start cholestyramine and liposomal glutathione for detox, and pharmaceutical yeast meds. He also had me start Fibroboost and Meriva for inflammation control, and NT Factor Energy for mitochondrial support. The first antibiotic I start is Biaxin, then I’ll add in Malarone for the Babesia. If tolerated, I add in grapefruit seed extract to break up cysts. I’m on day 2 of the Biaxin and I’m waiting for the storm to begin. I hope that the detox and inflammation supplements will minimize any herxes, but we’ll see.

I wasn’t prepared for the cost of treatment. My ABX cost $300, and the antifungals cost another $50 (out of pocket). The detox supplements will run me another $150 per month. This is on top of the cost of office visits and my other supplements. Yikes. It’s a good thing my husband loves me. I’ve become one expensive gal.

I started reading Dr. Richard Horowitz’ book, Why Can’t I Get Better? Solving the Mystery of Lyme and Chronic Disease, which is #10 on the New York Times list of top-selling science books. His approach is comprehensive, with a 16 point diagnosis map to determine the whole picture of what ails chronically ill patients. The book is quite dense, as it is meant for both patients and practitioners. But it is written clearly and in a friendly tone, so I find it easy to read, albeit in small chunks. I find the case studies very helpful. I can relate to his patients very well.

So that’s all for now. I’ll write an update when all the meds kick in. I hope for the best, but am preparing for the worst.

Best,

Laura