Tag Archives: misdiagnosis

Bartonella as a Possible Cause for Rheumatic Disease

Hello to All,

Following is a link to an excellent audio interview with Dr. Robert Mozayeni, a rheumatologist in Bethesda, MD who has conducted research with patients with chronic inflammatory diseases and found a link to Bartonella infection. I highly recommend listening to it. This could be a real breakthrough, especially since it comes from a conventionally trained MD.

http://www.peoplespharmacy.com/MozayeniXtended.mp3

Here are some important points from the interview:

  • Chronic  rheumatological diseases often have an infection as a root cause
  • Lyme Disease is often a blanket diagnosis when in fact organisms other than borrelia are the problem. Those with Bartonella can often be misdiagnosed as having chronic borreliosis, which similarly manifests, though the two are distinct.
  • Treating a patient for Borrelia when they actually have Bartonella can have detrimental effects
  • Bartonella is hard to detect and difficult to treat
  • Typical testing for Bartonella is often faulty and results in under diagnosis
  • Treating Bartonella involves a long course of antibiotics, at least 6 months
  • Neurological symptoms are common with bartonella infection
  • Patients are often stigmatized and traumatized after repeated treatment failures in the medical system

Background

In collaboration with Dr. Robert Mozayeni, a rheumatologist based in Maryland, and Dr. Ricardo Maggi, a research assistant professor at NC State, Dr. Ed Breitschwerdt, professor of internal medicine at NC State’s College of Veterinary Medicine and adjunct professor of medicine at Duke University, tested blood samples from 296 patients for evidence of Bartonella infection. The patients had previously been diagnosed with conditions ranging from Lyme disease to arthritis to chronic fatigue. Since rheumatic symptoms have sometimes been reported following cat scratch disease, the researchers wanted to see if these patients tested positive for B. henselae.

Of the 296 patients, 62 percent had Bartonella antibodies, which supported prior exposure to these bacteria.

Breitschwerdt and Maggi figured out how to cultivate the bacteria in the laboratory from blood samples of infected people. They founded a company called Galaxy Diagnostics to handle the laboratory volume. For information on Bartonella testing used by Dr. Mozayeni’s Clinic, please visit http://www.galaxydx.com/web/human-health/test-descriptions/

I dislike the narrow definition of Lyme Disease as an infection of only Borrelia, because so often these infections go together. However, I think that this research is a big step. Hurray for Drs. Mozayeni, Breitschwerdt, and Maggi!

Best,

Laura

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Lyme Disease Signs and Symptoms

No wonder Lyme Disease is often called “The Great Imitator.” Check this out…

Signs and Symptoms of Infection

– copied from The Townsend Letter website: http://www.townsendletter.com/Jan2005/lyme0105.htm

The first recognizable symptom following a tick bite is the development of a rash at the site within 7 to 10 days. The rash expands with an area of central clearing. Other symptoms may include low-grade fever and/or headache. The rash and early symptoms clear within 3 to 4 weeks. Multiple secondary rashes may occur following this time period. Bouts of arthritis, usually involving large joints, especially the knee, are very common. Arthritis attacks usually resolve within 3 to 4 years with or without treatment.

Early neurological complications include Bell’s palsy, meningitis and encephalitis. Sub-acute symptoms may include cognitive deficits, mood and sleep disturbances, persisting for more than 10 years. One of the most common symptoms is intense fatigue. Additional symptoms may include memory loss, poor coordination, slurred speech, poor concentration, unusual depression, burning, stabbing pain, tremors, anxiety, swollen glands and tinnitus.

Some Lyme Disease Signs and Symptoms

  1. Intense Fatigue
  2. Memory Loss
  3. Burning/Stabbing Pain
  4. Tremors
  5. Joint Pain/Swelling/Stiffness
  6. Shortness of Breath
  7. Poor Coordination
  8. Anxiety
  9. Slurred Speech
  10. Swollen Glands
  11. Chills and/or Fever
  12. Nausea/Vomiting
  13. Rash
  14. Muscle Cramps
  15. Sudden Mood Swings
  16. Headaches/Migraines
  17. Poor Concentration
  18. Light Sensitivity
  19. Unusual Depression
  20. Tinnitus

Most Common Diseases Associated with Lyme

  1. Alzheimer’s Disease
  2. Polymyalgia rheumatica
  3. ALS
  4. Reflex sympathetic dystrophy
  5. Bell’s Palsy
  6. Rheumatoid Arthritis
  7. Chronic Fatigue Syndrome (CFS)
  8. Scleroderma
  9. Fibromyalgia
  10. Syphilis
  11. Irritable Bowel Syndrome
  12. Multiple Sclerosis
  13. Lupus
  14. Parkinson’s Disease
  15. Depression
  16. Autoimmune Disorders
  17. Middle Ear Pressure
  18. Tinnitus
  19. Vertigo
  20. Rheumatoid Arthritis

Ack! No wonder this disease is so hard to diagnose. Over the last 14 years I have had a number of the symptoms listed above. I started thinking I was crazy. But I wasn’t.

Two words of advice for anyone else suffering from multiple symptoms such as these: get tested. And be sure to get tested by a doc who knows Lyme Disease well.